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RADx® Data Hub
Variable Information
LabelSickle cell disease
SectionMedical History
Data Typeinteger
RADx Variable CategoryRADx Core Variable
Description
The nih_sickle_cell_disease data element records responses to the prompt, or a congruently meaning prompt, "Sickle cell disease". Equivalent prompts are: - "Sickle Cell Anemia" RADx-UP - "Sickle cell disease" RADx-rad - "Have you ever been told by a physician or healthcare provider that you have sickle cell anemia?" RADx-Tech The values for this data element are integers that come from a list of 5 permissible integer values. The nih_sickle_cell_disease data element is the result of the harmonization of other RADx program data elements: cc_sickle RADx-UP; sickle_cell_disease RADx-rad; sc_anemia RADx-Tech; dht_sickle_cell_disease RADx-DHT Note that the meaning of the value 97 is context specific and depends on the subset of permissible value used by a specific study (not all studies presented the full set of permissible values documented here for this data element). Therefore, the meaning of the value 97 in an individual data record MUST be determined by referring to the original data dictionary for the non-harmonized data in that study.
Keywordsdrepanocytosis; Haemoglobin S disease without crisis; haemoglobin SC disease; Hb SC disease; Hb-S/Hb-C disease; Hb-SS disease without crisis; Hemoglobin S disease without crisis; hemoglobin SC disease; sickle cell anemia; Sickle Cell Disease; sickle-cell/Hb-C disease without crisis; sickling disorder due to Haemoglobin S; sickling disorder due to Hemoglobin S
Term
BioPortal Logo [MONDO:0011382] sickle cell anemia
From
RADx-DHT dht_sickle_cell_disease
RADx-Tech sc_anemia
RADx-UP cc_sickle_2
RADx-rad sickle_cell_disease
Permissible Values
Specimens Table
Value
Label
0
No
1
Yes
97
Other
98
Don’t know
99
Prefer not to answer
List of Studies Using Variable