dbGaP Study Accession: phs002650
NIH Institute/Center: NIMHD
RADx Data Program: RADx-UP
Release Date: 03/28/2025
Study Description: This project collaboratively partnered with American Indian populations to establish COVID-19 services and resources for American Indian communities. The Building Resilience and Vital Equity (BRAVE) project seeked to partner with American Indian tribal communities in North Carolina to establish COVID-19 services and resources for American Indian communities. The goal of this study was to: 1) understand the barriers and social implications of COVID-19 testing and vaccination among American Indians by designing and implementing culturally sensitive survey tools and intervention materials, 2) implement BRAVE outreach and testing interventions to increase testing in American Indian communities, and 3) analyze data and share back with tribal communities to improve perceptions of COVID-19 testing in the AI community and decrease in vaccine hesitancy. Design: This project was broken into 3 phases. Phase 1 relied on an exploratory design, specifically the grounded theory approach, where data was collected through semi-structured interviews with study participants. Interview questions were open-ended to further understand the subjects' perceptions of COVID-19, and the barriers to testing and vaccinations. The perspectives gained from the interviews (individual and/or focus group) were used to further guide the study. In Phase 2, the data collected in Phase 1 was used to develop and deploy health surveys on barriers to COVID-19 testing and vaccination. In Phase 3, the data gathered in Phases 1-2 was used to develop culturally appropriate educational materials and deploy the "Protect Your Elders" campaign to educate American Indian communities as part of a behavioral intervention. The objective in Phase 3 was to determine if the PYE campaign increases the likelihood of testing and COVID-19 vaccinations in American Indian communities.
Updated Date: 1/3/2023
Principal Investigator: Kumar, Deepak
Has Data Files: Yes
Study Domain: Pandemic Perceptions or Decision-Making; Social Determinants of Health; Testing Rate or Uptake; Vaccination Rate or Uptake
Data Collection Method: Interview or Focus Group; Survey
Keywords: COVID Outreach/Education; Testing Disparities; Vaccination Disparities
Study Design: Interventional or Clinical Trial
Multi-Center Study: No
Data Types: Behavioral; Questionnaire or Survey; Social
Study Start Date: 11/01/2020
Study End Date: 10/31/2022
Species: Human
Estimated Cohort Size: 4000
Study Population Focus: Racial or Ethnic Minorities; Underserved or Vulnerable Populations
Acknowledgement Statement: This study was supported through funding, 3R01MD012767-04S1, for the National Institute on Minority Health and Health Disparities (NIMHD) as part of the RADx-UP program. The BRAVE Project would like to acknowledge our partners at the University of North Carolina at Pembroke and the Lumbee Tribe of North Carolina for the success of this work. We gratefully acknowledge the contribution of our community advisory board members. Approved users should acknowledge the provision of data access by dbGaP for accession phs002650.v1.p1, and the NIH RADx Data Hub. Approved users should also acknowledge the specific version(s) of the dataset(s) obtained from the NIH RADx Data Hub.
Funding Opportunity Announcement (FOA) Number: PA-20-135
NIH Grant or Contract Number(s): 3R01MD012767-04S1
Consent/Data Use Limitations: General Research Use
Variable Name | Label |
---|---|
nih_record_id | User ID |
nih_race | What is your race? |
nih_ethnicity | Are you of Hispanic or Latino origin? May include Spanish origin. |
nih_age | What is your age? |
nih_sex | What is your biological sex assigned at birth? |
nih_education | What is the highest level of education you have achieved outside or in the United States? |
nih_employment | Please specify your employment status. |
nih_insurance | What kind of health insurance do you have? |
nih_disability | Do you have a disability, including serious physical or mental conditions, that interfere with your ability to carry out daily activities? |
nih_health_status | Would you say that (your) health in general is excellent, very good, good, fair, or poor? |
nih_height | What is your height in inches? |
nih_weight | What is your weight in pounds? |
age_yrs | Age For babies less than 1 year old, do not write the age in months. Write 0 as the age. (Years) |
bio_sex_birth_2 | What was your sex assigned at birth on your birth certificate? |
current_employment_status | We would like to know about what you do -- are you working now, looking for work, retired, keeping house, a student, or something else? |
hi_coverage_type | What is the primary kind of health insurance or health care plan that you have now? (Exclude plans that pay for only one type of Service (such as, nursing home care, accidents, family planning, or dental care) and plans that only provide extra cash when hospitalized. ) |
race_ethn_hispanic | Are you of Hispanic, Latino, or Spanish origin? |
race_ethn_race | What is your race? Mark one or more boxes. (Check all that apply) |
self_reported_disability | Do you have a disability that interferes with your ability to carry out daily activities? Examples of daily activities include walking, climbing stairs, shopping, balancing a checkbook, bathing or dressing. |
self_reported_height_feet | Feet |
self_reported_height_inches | Inches |
self_reported_weight_lbs | How much do you weigh without clothes or shoes? If you are currently pregnant, how much did you weigh before your pregnancy? |
agreeordis_mask | - |
agreeordis_norm | - |
agreeordis_relax | - |
agreeordis_resp | - |
child_vaccine | - |
consent_given | - |
covid_pandemic_challenges_abod_2 | - |
covid_pandemic_challenges_food_2 | - |
covid_pandemic_challenges_wate_2 | - |
covid_vaccine | - |
cov_pan_chal_hlth_2 | - |
cov_pan_chal_med_2 | - |
cov_pan_chlng_trans_2 | - |
cov_tst_mthd_2 | - |
diff_test | - |
easydiff_con | - |
easydiff_info | - |
easydiff_sign | - |
edu_years_of_school | - |
employed_ew | - |
employed_healthcare_2 | - |
family_income | - |
flushot_child | - |
flu_vaccinehistind_2 | - |
flu_vaccine_season_3 | - |
hi_loss_covid | - |
household_famgen_3 | - |
household_homeless | - |
index | - |
isolate_maintain_job | - |
jobloss_covid19_2 | - |
language_home | - |
language_home___1 | - |
language_home___10 | - |
language_home___11 | - |
language_home___12 | - |
language_home___13 | - |
language_home___14 | - |
language_home___15 | - |
language_home___16 | - |
language_home___17 | - |
language_home___18 | - |
language_home___19 | - |
language_home___2 | - |
language_home___20 | - |
language_home___21 | - |
language_home___22 | - |
language_home___23 | - |
language_home___24 | - |
language_home___25 | - |
language_home___26 | - |
language_home___27 | - |
language_home___28 | - |
language_home___29 | - |
language_home___3 | - |
language_home___30 | - |
language_home___31 | - |
language_home___32 | - |
language_home___33 | - |
language_home___34 | - |
language_home___35 | - |
language_home___36 | - |
language_home___37 | - |
language_home___38 | - |
language_home___39 | - |
language_home___4 | - |
language_home___40 | - |
language_home___41 | - |
language_home___42 | - |
language_home___43 | - |
language_home___44 | - |
language_home___45 | - |
language_home___46 | - |
language_home___5 | - |
language_home___6 | - |
language_home___7 | - |
language_home___8 | - |
language_home___9 | - |
language_home___90 | - |
language_home___99 | - |
language_pref | - |
lifestatus1 | - |
lifestatus2 | - |
lifestatus3 | - |
positiveyear_covidtest_3 | - |
prevent_test | - |
prevent_test_1 | - |
prevent_test_2 | - |
prevent_test_3 | - |
prevent_test_4 | - |
prevent_test_5 | - |
prevent_test_6 | - |
quarantine_maintain_job | - |
race_ethn_race___1 | - |
race_ethn_race___15 | - |
race_ethn_race___2 | - |
race_ethn_race___3 | - |
race_ethn_race___4 | - |
race_ethn_race___5 | - |
race_ethn_race___99 | - |
recentresult_covidtest | - |
recentyear_covidtest_3 | - |
redcap_event_name | - |
redcap_repeat_instance | - |
redcap_repeat_instrument | - |
second_shot | - |
self_reported_health_status_assessment | - |
self_reported_height_coded | - |
self_reported_weight_units_2 | - |
tested_for_covid | - |
tested_positive_for_covid | - |
testing_loc | - |
testingloc_cl | - |
testingloc_comm | - |
testingloc_drive | - |
testingloc_drug | - |
testingloc_home | - |
testingloc_lab | - |
testingloc_mob | - |
testingloc_na | - |
testingloc_other | - |
testing_reasons | - |
testreas_dept | - |
testreas_expose | - |
testreas_know | - |
testreas_na | - |
testreas_prev | - |
testreas_rec | - |
testreas_require | - |
testreas_sympt | - |
truefalse_eld | - |
truefalse_exp | - |
truefalse_ill | - |
truefalse_inf | - |
truefalse_neg | - |
truefalse_nosym | - |
truefalse_spread | - |
truefalse_test | - |
truefalse_vac | - |
unable_test | - |
userlang | - |
vaccine_concerns | - |
vaccine_concerns___11 | - |
vaccine_concerns_3___1 | - |
vaccine_concerns_3___10 | - |
vaccine_concerns_3___2 | - |
vaccine_concerns_3___3 | - |
vaccine_concerns_3___4 | - |
vaccine_concerns_3___5 | - |
vaccine_concerns_3___6 | - |
vaccine_concerns_3___7 | - |
vaccine_concerns_3___8 | - |
vaccine_concerns_3___9 | - |
vaccine_import | - |
vaccine_import_1 | - |
vaccine_import_10 | - |
vaccine_import_11 | - |
vaccine_import_2 | - |
vaccine_import_3 | - |
vaccine_import_4 | - |
vaccine_import_5 | - |
vaccine_import_6 | - |
vaccine_import_7 | - |
vaccine_import_8 | - |
vaccine_import_9 | - |
vaccine_plan | - |
vaccine_status | - |
vac_source | - |
vacsource_comm | - |
vacsource_dept | - |
vacsource_emp | - |
vacsource_fait | - |
vacsource_fri | - |
vacsource_ins | - |
vacsource_med | - |
vacsource_pha | - |
vacsource_web | - |
where_test | - |
work_ppe_2 | - |
work_wash_2 | - |