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Study Information

dbGaP Study Accession: phs002650

NIH Institute/Center: NIMHD

RADx Data Program: RADx-UP

Release Date: 03/28/2025

Study Description: This project collaboratively partnered with American Indian populations to establish COVID-19 services and resources for American Indian communities. The Building Resilience and Vital Equity (BRAVE) project seeked to partner with American Indian tribal communities in North Carolina to establish COVID-19 services and resources for American Indian communities. The goal of this study was to: 1) understand the barriers and social implications of COVID-19 testing and vaccination among American Indians by designing and implementing culturally sensitive survey tools and intervention materials, 2) implement BRAVE outreach and testing interventions to increase testing in American Indian communities, and 3) analyze data and share back with tribal communities to improve perceptions of COVID-19 testing in the AI community and decrease in vaccine hesitancy. Design: This project was broken into 3 phases. Phase 1 relied on an exploratory design, specifically the grounded theory approach, where data was collected through semi-structured interviews with study participants. Interview questions were open-ended to further understand the subjects' perceptions of COVID-19, and the barriers to testing and vaccinations. The perspectives gained from the interviews (individual and/or focus group) were used to further guide the study. In Phase 2, the data collected in Phase 1 was used to develop and deploy health surveys on barriers to COVID-19 testing and vaccination. In Phase 3, the data gathered in Phases 1-2 was used to develop culturally appropriate educational materials and deploy the "Protect Your Elders" campaign to educate American Indian communities as part of a behavioral intervention. The objective in Phase 3 was to determine if the PYE campaign increases the likelihood of testing and COVID-19 vaccinations in American Indian communities.

Updated Date: 1/3/2023

Principal Investigator: Kumar, Deepak

Has Data Files: Yes

Study Domain: Pandemic Perceptions or Decision-Making; Social Determinants of Health; Testing Rate or Uptake; Vaccination Rate or Uptake

Data Collection Method: Interview or Focus Group; Survey

Keywords: COVID Outreach/Education; Testing Disparities; Vaccination Disparities

Study Design: Interventional or Clinical Trial

Multi-Center Study: No

Data Types: Behavioral; Questionnaire or Survey; Social

Study Start Date: 11/01/2020

Study End Date: 10/31/2022

Species: Human

Estimated Cohort Size: 4000

Study Population Focus: Racial or Ethnic Minorities; Underserved or Vulnerable Populations

Acknowledgement Statement: This study was supported through funding, 3R01MD012767-04S1, for the National Institute on Minority Health and Health Disparities (NIMHD) as part of the RADx-UP program. The BRAVE Project would like to acknowledge our partners at the University of North Carolina at Pembroke and the Lumbee Tribe of North Carolina for the success of this work. We gratefully acknowledge the contribution of our community advisory board members. Approved users should acknowledge the provision of data access by dbGaP for accession phs002650.v1.p1, and the NIH RADx Data Hub. Approved users should also acknowledge the specific version(s) of the dataset(s) obtained from the NIH RADx Data Hub.

Funding Opportunity Announcement (FOA) Number: PA-20-135

NIH Grant or Contract Number(s): 3R01MD012767-04S1

Consent/Data Use Limitations: General Research Use

Variable Information
Total Variables: 202
Study Variables Information Table
Variable Name
Label
nih_record_idUser ID
nih_raceWhat is your race?
nih_ethnicityAre you of Hispanic or Latino origin? May include Spanish origin.
nih_ageWhat is your age?
nih_sexWhat is your biological sex assigned at birth?
nih_educationWhat is the highest level of education you have achieved outside or in the United States?
nih_employmentPlease specify your employment status.
nih_insuranceWhat kind of health insurance do you have?
nih_disabilityDo you have a disability, including serious physical or mental conditions, that interfere with your ability to carry out daily activities?
nih_health_statusWould you say that (your) health in general is excellent, very good, good, fair, or poor?
nih_heightWhat is your height in inches?
nih_weightWhat is your weight in pounds?
age_yrsAge For babies less than 1 year old, do not write the age in months. Write 0 as the age. (Years)
bio_sex_birth_2What was your sex assigned at birth on your birth certificate?
current_employment_statusWe would like to know about what you do -- are you working now, looking for work, retired, keeping house, a student, or something else?
hi_coverage_typeWhat is the primary kind of health insurance or health care plan that you have now? (Exclude plans that pay for only one type of Service (such as, nursing home care, accidents, family planning, or dental care) and plans that only provide extra cash when hospitalized. )
race_ethn_hispanicAre you of Hispanic, Latino, or Spanish origin?
race_ethn_raceWhat is your race? Mark one or more boxes. (Check all that apply)
self_reported_disabilityDo you have a disability that interferes with your ability to carry out daily activities? Examples of daily activities include walking, climbing stairs, shopping, balancing a checkbook, bathing or dressing.
self_reported_height_feetFeet
self_reported_height_inchesInches
self_reported_weight_lbsHow much do you weigh without clothes or shoes? If you are currently pregnant, how much did you weigh before your pregnancy?
agreeordis_mask-
agreeordis_norm-
agreeordis_relax-
agreeordis_resp-
child_vaccine-
consent_given-
covid_pandemic_challenges_abod_2-
covid_pandemic_challenges_food_2-
covid_pandemic_challenges_wate_2-
covid_vaccine-
cov_pan_chal_hlth_2-
cov_pan_chal_med_2-
cov_pan_chlng_trans_2-
cov_tst_mthd_2-
diff_test-
easydiff_con-
easydiff_info-
easydiff_sign-
edu_years_of_school-
employed_ew-
employed_healthcare_2-
family_income-
flushot_child-
flu_vaccinehistind_2-
flu_vaccine_season_3-
hi_loss_covid-
household_famgen_3-
household_homeless-
index-
isolate_maintain_job-
jobloss_covid19_2-
language_home-
language_home___1-
language_home___10-
language_home___11-
language_home___12-
language_home___13-
language_home___14-
language_home___15-
language_home___16-
language_home___17-
language_home___18-
language_home___19-
language_home___2-
language_home___20-
language_home___21-
language_home___22-
language_home___23-
language_home___24-
language_home___25-
language_home___26-
language_home___27-
language_home___28-
language_home___29-
language_home___3-
language_home___30-
language_home___31-
language_home___32-
language_home___33-
language_home___34-
language_home___35-
language_home___36-
language_home___37-
language_home___38-
language_home___39-
language_home___4-
language_home___40-
language_home___41-
language_home___42-
language_home___43-
language_home___44-
language_home___45-
language_home___46-
language_home___5-
language_home___6-
language_home___7-
language_home___8-
language_home___9-
language_home___90-
language_home___99-
language_pref-
lifestatus1-
lifestatus2-
lifestatus3-
positiveyear_covidtest_3-
prevent_test-
prevent_test_1-
prevent_test_2-
prevent_test_3-
prevent_test_4-
prevent_test_5-
prevent_test_6-
quarantine_maintain_job-
race_ethn_race___1-
race_ethn_race___15-
race_ethn_race___2-
race_ethn_race___3-
race_ethn_race___4-
race_ethn_race___5-
race_ethn_race___99-
recentresult_covidtest-
recentyear_covidtest_3-
redcap_event_name-
redcap_repeat_instance-
redcap_repeat_instrument-
second_shot-
self_reported_health_status_assessment-
self_reported_height_coded-
self_reported_weight_units_2-
tested_for_covid-
tested_positive_for_covid-
testing_loc-
testingloc_cl-
testingloc_comm-
testingloc_drive-
testingloc_drug-
testingloc_home-
testingloc_lab-
testingloc_mob-
testingloc_na-
testingloc_other-
testing_reasons-
testreas_dept-
testreas_expose-
testreas_know-
testreas_na-
testreas_prev-
testreas_rec-
testreas_require-
testreas_sympt-
truefalse_eld-
truefalse_exp-
truefalse_ill-
truefalse_inf-
truefalse_neg-
truefalse_nosym-
truefalse_spread-
truefalse_test-
truefalse_vac-
unable_test-
userlang-
vaccine_concerns-
vaccine_concerns___11-
vaccine_concerns_3___1-
vaccine_concerns_3___10-
vaccine_concerns_3___2-
vaccine_concerns_3___3-
vaccine_concerns_3___4-
vaccine_concerns_3___5-
vaccine_concerns_3___6-
vaccine_concerns_3___7-
vaccine_concerns_3___8-
vaccine_concerns_3___9-
vaccine_import-
vaccine_import_1-
vaccine_import_10-
vaccine_import_11-
vaccine_import_2-
vaccine_import_3-
vaccine_import_4-
vaccine_import_5-
vaccine_import_6-
vaccine_import_7-
vaccine_import_8-
vaccine_import_9-
vaccine_plan-
vaccine_status-
vac_source-
vacsource_comm-
vacsource_dept-
vacsource_emp-
vacsource_fait-
vacsource_fri-
vacsource_ins-
vacsource_med-
vacsource_pha-
vacsource_web-
where_test-
work_ppe_2-
work_wash_2-
Study Documents
Study Documents Table
Document
Document Name
File Size
Download
Study Documentationproject54_DDE_dictionary_origcopy.docx45.74 KB
READMEproject54_README.html274.35 KB
Data Files
Total Files: 8
Data Files: 3
Metadata Files: 3
Dictionary Files: 2
Study Datasets Table
File Name
File Type
File Format(s)
# of Records
# of Variables
Metadata
Dictionary
project54_DATA_transformcopy.csvTabular Data - Harmonizedcsv1175
project54_DDE_DATA_origcopy.csvTabular Data - Non-harmonizedcsv1175

project54_DATA_origcopy.csvTabular Data - Non-harmonizedcsv1175