dbGaP Study Accession: phs003365
NIH Institute/Center: NIMHD
RADx Data Program: RADx-UP
DOI: 10.60773/sfgj-td47
Release Date: 12/06/2023
Study Description: The study examined ways of understanding and responding to sources of mistrust and misinformation about COVID-19. The research also refined community-engaged research approaches to enhance the process of building and sustaining trust with communities. A central theme of the proposed research was to develop processes and resources to assure individuals have the tools and information to make well-informed choices about how they respond to COVID-19. The ultimate goal was to begin to address the long-term, deeply embedded issues of trust and injustice that have detrimentally impacted the health of communities of color.
Updated Date: 04/17/2024
Principal Investigator: Southerland, William M
Has Data Files: Yes
Study Domain: Community Outreach Programs; Pandemic Perceptions or Decision-Making
Data Collection Method: Survey
Keywords: Building Trust Amongst Marginalized Communities; COVID Education
Study Design: Case-Control
Multi-Center Study: Yes
Study Sites: Howard University; Be Health Empowered (BHE) Group; African Women's Cancer Awareness Association (AWCAA)
Data Types: Questionnaire or Survey
Study Start Date: 11/01/2020
Study End Date: 01/31/2023
Species: Human
Sample Size: 214
Study Population Focus: Adults; African Americans; Lower Socioeconomic Status (SES) Populations; Older Adults or Elderly; Racial or Ethnic Minorities; Underserved or Vulnerable Populations
Acknowledgement Statement: This study was supported through funding, 3U54MD007597-35S2, for the National Institute on Minority Health and Health Disparities (NIMHD) as part of the RADx-UP program. Thanks to the participants of this study. This project is aimed at developing community-engaged projects across the United States to assess and expand COVID-19 testing for underserved and/or vulnerable populations. Approved users should acknowledge the provision of data access by dbGaP for accession phs003365.v1.p1, and the NIH RADx Data Hub. Approved users should also acknowledge the specific version(s) of the dataset(s) obtained from the NIH RADx Data Hub.
Funding Opportunity Announcement (FOA) Number: PA-20-272
NIH Grant or Contract Number(s): 3U54MD007597-35S2
Consent/Data Use Limitations: General Research Use
Variable Name | Label |
|---|---|
| nih_record_id | User ID |
| nih_race | What is your race? |
| nih_ethnicity | Are you of Hispanic or Latino origin? May include Spanish origin. |
| nih_age | What is your age? |
| nih_sex | What is your biological sex assigned at birth? |
| nih_zip | What is your zip code? |
| nih_employment | Please specify your employment status. |
| nih_insurance | What kind of health insurance do you have? |
| nih_disability | Do you have a disability, including serious physical or mental conditions, that interfere with your ability to carry out daily activities? |
| nih_deaf | Are you deaf or do you have serious difficulty hearing? |
| nih_blind | Are you blind or do you have serious difficulty seeing, even when wearing glasses? |
| nih_memory | Because of a physical, mental, or emotional condition, do you have serious difficulty concentrating, remembering, or making decisions? |
| nih_walk_climb | Do you have serious difficulty walking or climbing stairs? |
| nih_vape_freq | Vaping Frequency: Do you now use electronic cigarettes every day, some days, rarely, or not at all? |
| nih_cig_smoke_freq | Nicotine Frequency: Do you now smoke cigarettes? |
| nih_smoking_yn | Do you use any tobacco/nicotine products (including cigarettes, cigars, e-cigarettes, etc)? |
| nih_history_smoking | History of Smoking |
| nih_alcohol_yn | Alcohol use (Yes or No) |
| nih_lifetime_use_alcohol | In your entire life, have you had at least 1 drink of any kind of alcohol, not counting small tastes or sips? (Yes or No) |
| nih_alcohol_frequency | How often did you have a drink containing alcohol ? |
| nih_asthma | Asthma |
| nih_cancer_past_yr | Cancer diagnosis and/or treatment within the past 12 months |
| nih_cardiovascular_disease | Cardiovascular disease |
| nih_chronic_kidney_disease | Chronic kidney disease |
| nih_diabetes | Diabetes |
| nih_hypertension | Hypertension |
| nih_mental_health_disorder | Mental health disorder |
| nih_sickle_cell_disease | Sickle cell disease |
| nih_immunocompromised | Immunocompromised condition |
| nih_autoimm | Autoimmune disease |
| nih_copd | Chronic obstructive pulmonary disease (COPD) |
| nih_chronic_lung | Other chronic lung disease |
| nih_depression | Depression |
| nih_alc_sub_abuse | Alcohol or substance use disorder |
| nih_iv_drug_use | Intravenous drug use |
| nih_other_chronic_cond | Other chronic condition |
| nih_cough | Cough |
| nih_fever_chills | Fever or Chills |
| nih_diff_breath | Shortness of breath or difficulty breathing |
| nih_headache | Headache |
| nih_muscle_ache | Muscle ache |
| nih_olfactory | New loss of taste or smell |
| nih_fatigue | Excessive fatigue |
| nih_nausea_vomiting_diarrhea | Nausea, vomiting, or diarrhea |
| nih_abdom_pain | Abdominal pain |
| nih_skin_rash | Skin rash |
| nih_throat_congestion_nose | Sore throat, congestion or runny nose |
| nih_other_symp | Other |
| nih_health_status | Would you say that (your) health in general is excellent, very good, good, fair, or poor? |
| nih_height | What is your height in inches? |
| nih_weight | What is your weight in pounds? |
| age_yrs | Age For babies less than 1 year old, do not write the age in months. Write 0 as the age. (Years) |
| bio_sex_birth_2 | What was your sex assigned at birth on your birth certificate? |
| cc_asthma_2 | Asthma |
| cc_asud_2 | Alcohol or substance use disorder |
| cc_autoimm_2 | Autoimmune disease |
| cc_cancer_2 | Cancer diagnosis and/or treatment within the past 12 months |
| cc_chronickd_2 | Chronic kidney disease (CKD) |
| cc_clung_2 | Other chronic lung disease |
| cc_copd_2 | Chronic obstructive pulmonary disease (COPD) |
| cc_cvd_2 | Cardiovascular disease (CVD or heart disease) |
| cc_depression_2 | Depression |
| cc_diabetes_2 | Diabetes |
| cc_hypertension_2 | Hypertension (HTN, high blood pressure) |
| cc_imm_2 | Immunocompromised condition |
| cc_intrav_2 | Intravenous drug use |
| cc_otherchroniccond_2 | Other chronic condition |
| cc_othermh_2 | Other mental health disorder |
| cc_sickle_2 | Sickle Cell Anemia |
| covid_abpain_2 | Abdominal Pain |
| covid_cough_2 | Cough |
| covid_diffbreath_2 | Shortness of breath or difficulty breathing |
| covid_fever_2 | Fever or chills |
| covid_headache_2 | Headache |
| covid_myalgia_2 | Muscle or body aches |
| covid_nausea_2 | Feeling sick to your stomach or vomiting, diarrhea |
| covid_olfactory_2 | New loss of taste or smell |
| covid_other_2 | Other |
| covid_runnynose_2 | Sore throat, congestion or runny nose |
| covid_skinrash_2 | Skin Rash |
| current_employment_status | We would like to know about what you do -- are you working now, looking for work, retired, keeping house, a student, or something else? |
| disability_blind_2 | Are you blind, or do you have serious difficulty seeing, even when wearing glasses? |
| disability_deaf_2 | Are you deaf, or do you have serious difficulty hearing? |
| disability_decisions_2 | Because of a physical, mental, or emotional condition, do you have serious difficulty concentrating, remembering, or making decisions? (5 years of age or older) |
| disability_walking_2 | Do you have serious difficulty walking or climbing stairs? (5 years of age or older) |
| hi_coverage_type | What is the primary kind of health insurance or health care plan that you have now? (Exclude plans that pay for only one type of Service (such as, nursing home care, accidents, family planning, or dental care) and plans that only provide extra cash when hospitalized. ) |
| lifetime_use_alcohol | In your entire life, have you had at least 1 drink of any kind of alcohol, not counting small tastes or sips? |
| race_ethn_hispanic | Are you of Hispanic, Latino, or Spanish origin? |
| self_reported_disability | Do you have a disability that interferes with your ability to carry out daily activities? Examples of daily activities include walking, climbing stairs, shopping, balancing a checkbook, bathing or dressing. |
| self_reported_height_centimeters | Centimeters |
| self_reported_height_feet | Feet |
| self_reported_height_inches | Inches |
| self_reported_height_meters | Meters |
| self_reported_weight_kgs | How much do you weigh without clothes or shoes? If you are currently pregnant, how much did you weigh before your pregnancy? |
| self_reported_weight_lbs | How much do you weigh without clothes or shoes? If you are currently pregnant, how much did you weigh before your pregnancy? |
| smoker_cur_stat_2 | Do you now smoke cigarettes? |
| vaper_cur_stat | Do you now use electronic cigarettes every day, some days, rarely, or not at all? |
| zip_code | Zip Code |
| alcohol_date_mdy | - |
| alcohol_daysperweek | - |
| alcohol_drinksperday | - |
| cocaine_use_2 | - |
| consentdt_mdy | - |
| consent_given | - |
| consent_recontact | - |
| consent_zip_2 | - |
| covid_fatique_2 | - |
| covid_pandemic_challenges_abod_2 | - |
| covid_pandemic_challenges_food_2 | - |
| covid_pandemic_challenges_wate_2 | - |
| covid_vaccine | - |
| covid_vaccine_course | - |
| cov_pan_chal_hlth_2 | - |
| cov_pan_chal_med_2 | - |
| cov_pan_chlng_trans_2 | - |
| disability_date_mdy | - |
| drg_date_mdy | - |
| ecstasy_use | - |
| employed_ew | - |
| employed_healthcare_2 | - |
| family_income | - |
| fi_afford_balanced_meals | - |
| fi_change_diet | - |
| fi_change_diet_frequency | - |
| fi_eat_less | - |
| fi_food_money_frequency | - |
| fi_high_quality_2 | - |
| fi_hungry | - |
| flu_vaccinehistind_2 | - |
| flu_vaccine_season_3 | - |
| gender_identity_term_2 | - |
| hallu_use_2 | - |
| heroin_use_2 | - |
| hi_loss_covid | - |
| hlthstat_date_mdy | - |
| household_homeless | - |
| housing_date_mdy | - |
| iden_date_mdy | - |
| idrug_use_2 | - |
| index | - |
| jobloss_covid19_2 | - |
| language_english | - |
| language_home___1 | - |
| language_home___2 | - |
| language_home___3 | - |
| language_home___4 | - |
| language_home___5 | - |
| language_home___6 | - |
| language_home___7 | - |
| language_home___8 | - |
| language_home___9 | - |
| language_home___90 | - |
| language_home___99 | - |
| mari_use_2 | - |
| mari_use_smk_2 | - |
| mari_use_vap_2 | - |
| med_hx_date_mdy | - |
| meth_use_2 | - |
| missed_procedure_2 | - |
| pdrg_use_2 | - |
| preferred_contact_method_2 | - |
| race_ethn_asian_detail_3___1 | - |
| race_ethn_asian_detail_3___2 | - |
| race_ethn_asian_detail_3___3 | - |
| race_ethn_asian_detail_3___4 | - |
| race_ethn_asian_detail_3___5 | - |
| race_ethn_hispanic_detail_2___1 | - |
| race_ethn_hispanic_detail_2___2 | - |
| race_ethn_hispanic_detail_2___3 | - |
| race_ethn_hispanic_detail_2___4 | - |
| race_ethn_islander_detail_2___1 | - |
| race_ethn_islander_detail_2___10 | - |
| race_ethn_islander_detail_2___11 | - |
| race_ethn_islander_detail_2___12 | - |
| race_ethn_islander_detail_2___13 | - |
| race_ethn_islander_detail_2___14 | - |
| race_ethn_islander_detail_2___2 | - |
| race_ethn_islander_detail_2___3 | - |
| race_ethn_islander_detail_2___4 | - |
| race_ethn_islander_detail_2___5 | - |
| race_ethn_islander_detail_2___6 | - |
| race_ethn_islander_detail_2___7 | - |
| race_ethn_islander_detail_2___8 | - |
| race_ethn_islander_detail_2___9 | - |
| race_ethn_race___1 | - |
| race_ethn_race___15 | - |
| race_ethn_race___2 | - |
| race_ethn_race___3 | - |
| race_ethn_race___4 | - |
| race_ethn_race___5 | - |
| race_ethn_race___99 | - |
| redcap_event_name | - |
| redcap_repeat_instance | - |
| redcap_repeat_instrument | - |
| self_reported_health_status_assessment | - |
| self_reported_height_coded | - |
| self_reported_weight_units_2 | - |
| sex_orient_id | - |
| smoker_number | - |
| smoke_years | - |
| sociodem_date_mdy | - |
| sym_date_mdy | - |
| test_intent_2 | - |
| test_pbenearound_2 | - |
| test_pbeneexposed_2 | - |
| test_pbenepos_2 | - |
| test_pbenesafe_2 | - |
| test_pbenework_2 | - |
| test_pbeneworry_2 | - |
| test_percvaccuneg_2 | - |
| test_percvaccupos_2 | - |
| test_priskcontact_2 | - |
| test_priskhlthcare_2 | - |
| test_priskknow_2 | - |
| test_prisklater_2 | - |
| test_prisknohelp_2 | - |
| test_prisknosymp_2 | - |
| test_priskouch_2 | - |
| test_resneg_2___1 | - |
| test_resneg_2___2 | - |
| test_resneg_2___3 | - |
| test_resneg_2___4 | - |
| test_respos_2___1 | - |
| test_respos_2___2 | - |
| test_respos_2___3 | - |
| trust_coll_2 | - |
| trust_cortf_2 | - |
| trust_doc_2 | - |
| trust_fam_2 | - |
| trust_flead_2 | - |
| trust_news_2 | - |
| trust_social_2 | - |
| trust_usgov_2 | - |
| vacc_date_mdy | - |
| vaccine_avail | - |
| vaccine_concerns_3___1 | - |
| vaccine_concerns_3___10 | - |
| vaccine_concerns_3___2 | - |
| vaccine_concerns_3___3 | - |
| vaccine_concerns_3___4 | - |
| vaccine_concerns_3___5 | - |
| vaccine_concerns_3___6 | - |
| vaccine_concerns_3___7 | - |
| vaccine_concerns_3___8 | - |
| vaccine_concerns_3___9 | - |
| vaccine_reasons_3___1 | - |
| vaccine_reasons_3___2 | - |
| vaccine_reasons_3___3 | - |
| vaccine_reasons_3___4 | - |
| vaccine_reasons_3___5 | - |
| vaccine_reasons_3___6 | - |
| vaccine_reasons_3___7 | - |
| vaccine_reasons_3___8 | - |
| vaccine_reasons_3___9 | - |
| vaper_years | - |
| work_closecont_2 | - |
| work_ppe_2 | - |
| work_ppe_date_mdy | - |
| work_wash_2 | - |