dbGaP Study Accession: phs003757
NIH Institute/Center: NIMHD
RADx Data Program: RADx-UP
Release Date: 03/28/2025
Study Description: The goal of this study was to address community concerns with self-administering COVID-19 testing through a community-led intervention co-developed with Housing Collaborative Community Advisory Board (HC CAB). HC CAB partners reported that this partnership helped overcome mistrust common in the communities HC CAB serves. The nature of this interaction—which led the leading organizations to be viewed as trustworthy—was described as being an important intervention in and of itself. A central question in discussions on this topic was how to replicate this process of trust-building. This study was an attempt to standardize a process of relationship and trust building to be used as core components of a COVID-19 testing intervention which could be exported and reproduced in other settings.
Principal Investigator: England, Kelli
Has Data Files: Yes
Study Domain: At-Home or Over-the-Counter (OTC) Self-Testing; Community Outreach Programs
Data Collection Method: Interview or Focus Group
Keywords: Community Concerns
Study Design: Longitudinal Cohort
Multi-Center Study: No
Data Types: Psychological; Questionnaire or Survey; Social
Study Start Date: 11/01/2022
Study End Date: 10/31/2024
Species: Human
Estimated Cohort Size: 64
Study Population Focus: Adults
Acknowledgement Statement: This study was supported through funding, 6U01MD018316-02, for the National Institute on Minority Health and Health Disparities (NIMHD) as part of the RADx-UP program. We would like to thank our many participants and community partners for their continued support and participation, as well as the staff and support provided by RADx-UP. Approved users should acknowledge the provision of data access by dbGaP for accession phs003787.v1.p1, and the NIH RADx Data Hub. Approved users should also acknowledge the specific version(s) of the dataset(s) obtained from the NIH RADx Data Hub.
Funding Opportunity Announcement (FOA) Number: RFA-OD-22-005
NIH Grant or Contract Number(s): 6U01MD018316-02
Variable Name | Label |
|---|---|
| nih_record_id | User ID |
| nih_race | What is your race? |
| nih_ethnicity | Are you of Hispanic or Latino origin? May include Spanish origin. |
| nih_age | What is your age? |
| nih_sex | What is your biological sex assigned at birth? |
| nih_education | What is the highest level of education you have achieved outside or in the United States? |
| nih_employment | Please specify your employment status. |
| nih_insurance | What kind of health insurance do you have? |
| nih_disability | Do you have a disability, including serious physical or mental conditions, that interfere with your ability to carry out daily activities? |
| nih_vape_freq | Vaping Frequency: Do you now use electronic cigarettes every day, some days, rarely, or not at all? |
| nih_cig_smoke_freq | Nicotine Frequency: Do you now smoke cigarettes? |
| nih_smoking_yn | Do you use any tobacco/nicotine products (including cigarettes, cigars, e-cigarettes, etc)? |
| nih_history_smoking | History of Smoking |
| nih_alcohol_yn | Alcohol use (Yes or No) |
| nih_lifetime_use_alcohol | In your entire life, have you had at least 1 drink of any kind of alcohol, not counting small tastes or sips? (Yes or No) |
| nih_alcohol_frequency | How often did you have a drink containing alcohol ? |
| nih_asthma | Asthma |
| nih_cancer_past_yr | Cancer diagnosis and/or treatment within the past 12 months |
| nih_cardiovascular_disease | Cardiovascular disease |
| nih_chronic_kidney_disease | Chronic kidney disease |
| nih_diabetes | Diabetes |
| nih_hypertension | Hypertension |
| nih_mental_health_disorder | Mental health disorder |
| nih_sickle_cell_disease | Sickle cell disease |
| nih_pregnancy | Pregnancy status |
| nih_immunocompromised | Immunocompromised condition |
| nih_autoimm | Autoimmune disease |
| nih_copd | Chronic obstructive pulmonary disease (COPD) |
| nih_chronic_lung | Other chronic lung disease |
| nih_depression | Depression |
| nih_alc_sub_abuse | Alcohol or substance use disorder |
| nih_iv_drug_use | Intravenous drug use |
| nih_other_chronic_cond | Other chronic condition |
| nih_health_status | Would you say that (your) health in general is excellent, very good, good, fair, or poor? |
| nih_height | What is your height in inches? |
| nih_weight | What is your weight in pounds? |
| age_yrs | Age For babies less than 1 year old, do not write the age in months. Write 0 as the age. (Years) |
| bio_sex_birth_2 | What was your sex assigned at birth on your birth certificate? |
| cc_asthma_2 | Asthma |
| cc_asud_2 | Alcohol or substance use disorder |
| cc_autoimm_2 | Autoimmune disease |
| cc_cancer_2 | Cancer diagnosis and/or treatment within the past 12 months |
| cc_chronickd_2 | Chronic kidney disease (CKD) |
| cc_clung_2 | Other chronic lung disease |
| cc_copd_2 | Chronic obstructive pulmonary disease (COPD) |
| cc_cvd_2 | Cardiovascular disease (CVD or heart disease) |
| cc_depression_2 | Depression |
| cc_diabetes_2 | Diabetes |
| cc_hypertension_2 | Hypertension (HTN, high blood pressure) |
| cc_imm_2 | Immunocompromised condition |
| cc_intrav_2 | Intravenous drug use |
| cc_otherchroniccond_2 | Other chronic condition |
| cc_othermh_2 | Other mental health disorder |
| cc_sickle_2 | Sickle Cell Anemia |
| current_employment_status | We would like to know about what you do -- are you working now, looking for work, retired, keeping house, a student, or something else? |
| hi_coverage_type | What is the primary kind of health insurance or health care plan that you have now? (Exclude plans that pay for only one type of Service (such as, nursing home care, accidents, family planning, or dental care) and plans that only provide extra cash when hospitalized. ) |
| lifetime_use_alcohol | In your entire life, have you had at least 1 drink of any kind of alcohol, not counting small tastes or sips? |
| pregnancy_status | Are you currently pregnant? |
| race_ethn_hispanic | Are you of Hispanic, Latino, or Spanish origin? |
| self_reported_disability | Do you have a disability that interferes with your ability to carry out daily activities? Examples of daily activities include walking, climbing stairs, shopping, balancing a checkbook, bathing or dressing. |
| self_reported_height_feet | Feet |
| self_reported_height_inches | Inches |
| self_reported_weight_lbs | How much do you weigh without clothes or shoes? If you are currently pregnant, how much did you weigh before your pregnancy? |
| smoker_cur_stat_2 | Do you now smoke cigarettes? |
| vaper_cur_stat | Do you now use electronic cigarettes every day, some days, rarely, or not at all? |
| alcohol_daysperweek | - |
| consent_given | - |
| covid_pandemic_challenges_abod_2 | - |
| covid_pandemic_challenges_food_2 | - |
| covid_pandemic_challenges_wate_2 | - |
| covid_vaccine | - |
| cov_pan_chal_hlth_2 | - |
| cov_pan_chal_med_2 | - |
| cov_pan_chlng_trans_2 | - |
| cov_tst_mthd_2 | - |
| edu_years_of_school | - |
| employed_ew | - |
| employed_healthcare_2 | - |
| family_income | - |
| flu_vaccinehistind_2 | - |
| flu_vaccine_season_3 | - |
| gender_identity_term_2 | - |
| hi_loss_covid | - |
| household_famgen_3 | - |
| household_homeless | - |
| index | - |
| isolate_maintain_job | - |
| jobloss_covid19_2 | - |
| language_english | - |
| language_home___1 | - |
| language_home___2 | - |
| language_home___3 | - |
| language_home___4 | - |
| language_home___5 | - |
| language_home___6 | - |
| language_home___7 | - |
| language_home___8 | - |
| language_home___9 | - |
| language_home___90 | - |
| language_home___99 | - |
| positiveyear_covidtest_3 | - |
| quarantine_maintain_job | - |
| race_ethn_asian_detail_3___1 | - |
| race_ethn_asian_detail_3___2 | - |
| race_ethn_asian_detail_3___3 | - |
| race_ethn_asian_detail_3___4 | - |
| race_ethn_asian_detail_3___5 | - |
| race_ethn_islander_detail_2___1 | - |
| race_ethn_islander_detail_2___10 | - |
| race_ethn_islander_detail_2___11 | - |
| race_ethn_islander_detail_2___12 | - |
| race_ethn_islander_detail_2___13 | - |
| race_ethn_islander_detail_2___14 | - |
| race_ethn_islander_detail_2___2 | - |
| race_ethn_islander_detail_2___3 | - |
| race_ethn_islander_detail_2___4 | - |
| race_ethn_islander_detail_2___5 | - |
| race_ethn_islander_detail_2___6 | - |
| race_ethn_islander_detail_2___7 | - |
| race_ethn_islander_detail_2___8 | - |
| race_ethn_islander_detail_2___9 | - |
| race_ethn_race___1 | - |
| race_ethn_race___15 | - |
| race_ethn_race___2 | - |
| race_ethn_race___3 | - |
| race_ethn_race___4 | - |
| race_ethn_race___5 | - |
| race_ethn_race___99 | - |
| recentresult_covidtest | - |
| recentyear_covidtest_3 | - |
| redcap_event_name | - |
| redcap_repeat_instance | - |
| redcap_repeat_instrument | - |
| self_reported_health_status_assessment | - |
| self_reported_height_coded | - |
| self_reported_weight_units_2 | - |
| sex_orient_id | - |
| smoker_number | - |
| test_accesseasy_2 | - |
| test_accesswhere_2 | - |
| tested_for_covid | - |
| tested_positive_for_covid | - |
| vaccine_concerns_3___1 | - |
| vaccine_concerns_3___10 | - |
| vaccine_concerns_3___2 | - |
| vaccine_concerns_3___3 | - |
| vaccine_concerns_3___4 | - |
| vaccine_concerns_3___5 | - |
| vaccine_concerns_3___6 | - |
| vaccine_concerns_3___7 | - |
| vaccine_concerns_3___8 | - |
| vaccine_concerns_3___9 | - |
| vaccine_reasons_3___1 | - |
| vaccine_reasons_3___2 | - |
| vaccine_reasons_3___3 | - |
| vaccine_reasons_3___4 | - |
| vaccine_reasons_3___5 | - |
| vaccine_reasons_3___6 | - |
| vaccine_reasons_3___7 | - |
| vaccine_reasons_3___8 | - |
| vaccine_reasons_3___9 | - |