dbGaP Study Accession: phs002618
NIH Institute/Center: NCI
RADx Data Program: RADx-UP
Release Date: 08/31/2023
DOI: 10.60773/s0km-xf55
Study Description: The Rapid Acceleration of Diagnostics for Underserved Populations (RADx-UP) initiative supports supplements to individual NIH awards to increase COVID-19 testing among underserved populations. Leveraging the infrastructure of another project in NYC (National Cancer Institute, R01CA220591, Evaluation of Smoke-Free Housing Policy Impacts on Tobacco Smoke Exposure) and a longstanding set of partnerships among the NYC Housing Authority (NYCHA) and their resident boards, the NYC Health Department, NYC's municipal hospital system, NYU Grossman School of Medicine, and community partnerships, this study executed community-engaged investigations to improve COVID-19 testing for NYCHA residents. NYCHA is the largest public housing authority in North America, with 400,000 official residents living in 15% of the nation's public housing units. NYCHA provides a home to nearly 5% of NYC residents. Developments are spread throughout the city but concentrate in lower-income neighborhoods. Median family income is $20,000, and approximately 90% of NYCHA residents are Black or Hispanic. Apartment turnover is low due to subsidized rental assistance, and developments have organized resident associations, which facilitate capacity for sustained engagement and opportunities for community activation. Aim 1: Develop Sustainable Community Engagement Structures to Guide Current and Future Deployment of Evidence-Based COVID-19 Testing and Vaccination Options for NYC Public Housing Residents. In partnership with a network of community-based organizations (CBOs), NYCHA Resident Associations, and several municipal agencies, a platform for NYCHA-facing initiatives to reduce disparities in COVID-19 morbidity and mortality was established. The platform spanned distinct NYC neighborhoods to give NYCHA residents a voice in shaping COVID-19 testing initiatives. Aim 2: Quantify Inequities in COVID-19 Testing and SARS CoV-2 infection among Public Housing Residents. Triangulation occurred across granular and timely data sources to determine baseline testing and COVID-positivity rates among NYC's public housing resident population, with an emphasis on subgroups with (a) limited access to testing sites, (b) adequate access to testing sites but low testing rates, and (c) high positive test rates. Development-specific maps of testing sites were promulgated and prospective surveillance of testing using routine public health data was established. Aim 3: Discover Facilitators and Barriers to Testing, Isolation, and Follow-Up Care. To guide improvements to COVID-19 testing services, a mixed methods approach was applied to identify barriers to testing, implications and financial burden associated with a positive test result, feasibility of self-isolation for positive results, acceptability of tracing contacts, and privacy concerns. NYCHA residents and CBO partners were engaged in primary data collection and analysis in order to foster a shared understanding of prevention, testing, and management of COVID-19 among public housing residents. Aim 4. Test Community-Informed Strategies to Increase Testing Uptake. Leveraging an array of recently-launched testing initiatives across NYC, including on-site testing clinics, mobile vans, and door-to-door testing, a comparative effectiveness study was conducted to test the impact of a community health worker (CHW) model delivering a menu of community-informed testing options with and without navigation support, including home-testing strategies, on acceptance and uptake of COVID-19 screening tests.
Updated Date: 04/17/2024
Principal Investigator: Thorpe, Lorna
Has Data Files: Yes
Study Domain: At-Home or Over-the-Counter (OTC) Self-Testing; Community Outreach Programs; Mobile Unit Testing; Testing Rate or Uptake; Vaccination Rate or Uptake; Virological Testing
Data Collection Method: Survey
Keywords: COVID-related Health Disparities; Public Housing Residents
Study Design: Interventional or Clinical Trial
Multi-Center Study: No
Data Types: Questionnaire or Survey
Study Start Date: 09/23/2020
Study End Date: 11/30/2022
Species: Human
Estimated Cohort Size: 800
Study Population Focus: Adults; African Americans; Hispanics or Latinos; Lower Socioeconomic Status (SES) Populations
Publication URL: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9707719/; https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9851504/
Acknowledgement Statement: This study was supported through funding, 3R01CA220591-05S2, for the National Cancer Institute (NCI) as part of the RADx-UP program. Partners to be thanked: Community organization partners: Harlem Congregation for Community Initiatives, Henry Street Settlement, CAMBA. Municipal partners: NYC Health Department, NYC Housing Authority, NYC Test & Trace Program. Study participants. Approved users should acknowledge the provision of data access by dbGaP for accession phs002618.v1.p1, and the NIH RADx Data Hub. Approved users should also acknowledge the specific version(s) of the dataset(s) obtained from the NIH RADx Data Hub.
Funding Opportunity Announcement (FOA) Number: PA-20-135
NIH Grant or Contract Number(s): 3R01CA220591-05S2
Consent/Data Use Limitations: General Research Use
Variable Name | Label |
---|---|
nih_record_id | User ID |
nih_race | What is your race? |
nih_ethnicity | Are you of Hispanic or Latino origin? May include Spanish origin. |
nih_age | What is your age? |
nih_sex | What is your biological sex assigned at birth? |
nih_education | What is the highest level of education you have achieved outside or in the United States? |
nih_zip | What is your zip code? |
nih_employment | Please specify your employment status. |
nih_vape_freq | Vaping Frequency: Do you now use electronic cigarettes every day, some days, rarely, or not at all? |
nih_cig_smoke_freq | Nicotine Frequency: Do you now smoke cigarettes? |
nih_smoking_yn | Do you use any tobacco/nicotine products (including cigarettes, cigars, e-cigarettes, etc)? |
nih_history_smoking | History of Smoking |
nih_alcohol_yn | Alcohol use (Yes or No) |
nih_lifetime_use_alcohol | In your entire life, have you had at least 1 drink of any kind of alcohol, not counting small tastes or sips? (Yes or No) |
nih_alcohol_frequency | How often did you have a drink containing alcohol ? |
nih_asthma | Asthma |
nih_cancer_past_yr | Cancer diagnosis and/or treatment within the past 12 months |
nih_cardiovascular_disease | Cardiovascular disease |
nih_chronic_kidney_disease | Chronic kidney disease |
nih_diabetes | Diabetes |
nih_hypertension | Hypertension |
nih_mental_health_disorder | Mental health disorder |
nih_sickle_cell_disease | Sickle cell disease |
nih_pregnancy | Pregnancy status |
nih_immunocompromised | Immunocompromised condition |
nih_autoimm | Autoimmune disease |
nih_copd | Chronic obstructive pulmonary disease (COPD) |
nih_chronic_lung | Other chronic lung disease |
nih_depression | Depression |
nih_alc_sub_abuse | Alcohol or substance use disorder |
nih_iv_drug_use | Intravenous drug use |
nih_other_chronic_cond | Other chronic condition |
nih_cough | Cough |
nih_fever_chills | Fever or Chills |
nih_headache | Headache |
nih_muscle_ache | Muscle ache |
nih_olfactory | New loss of taste or smell |
nih_fatigue | Excessive fatigue |
nih_nausea_vomiting_diarrhea | Nausea, vomiting, or diarrhea |
nih_abdom_pain | Abdominal pain |
nih_skin_rash | Skin rash |
nih_throat_congestion_nose | Sore throat, congestion or runny nose |
nih_other_symp | Other |
nih_health_status | Would you say that (your) health in general is excellent, very good, good, fair, or poor? |
nih_height | What is your height in inches? |
nih_weight | What is your weight in pounds? |
age_yrs | Age For babies less than 1 year old, do not write the age in months. Write 0 as the age. (Years) |
bio_sex_birth_2 | What was your sex assigned at birth on your birth certificate? |
cc_asthma_2 | Asthma |
cc_asud_2 | Alcohol or substance use disorder |
cc_autoimm_2 | Autoimmune disease |
cc_cancer_2 | Cancer diagnosis and/or treatment within the past 12 months |
cc_chronickd_2 | Chronic kidney disease (CKD) |
cc_clung_2 | Other chronic lung disease |
cc_copd_2 | Chronic obstructive pulmonary disease (COPD) |
cc_cvd_2 | Cardiovascular disease (CVD or heart disease) |
cc_depression_2 | Depression |
cc_diabetes_2 | Diabetes |
cc_hypertension_2 | Hypertension (HTN, high blood pressure) |
cc_imm_2 | Immunocompromised condition |
cc_intrav_2 | Intravenous drug use |
cc_otherchroniccond_2 | Other chronic condition |
cc_othermh_2 | Other mental health disorder |
cc_sickle_2 | Sickle Cell Anemia |
covid_abpain_2 | Abdominal Pain |
covid_cough_2 | Cough |
covid_fever_2 | Fever or chills |
covid_headache_2 | Headache |
covid_myalgia_2 | Muscle or body aches |
covid_nausea_2 | Feeling sick to your stomach or vomiting, diarrhea |
covid_olfactory_2 | New loss of taste or smell |
covid_other_2 | Other |
covid_runnynose_2 | Sore throat, congestion or runny nose |
covid_skinrash_2 | Skin Rash |
current_employment_status | We would like to know about what you do -- are you working now, looking for work, retired, keeping house, a student, or something else? |
lifetime_use_alcohol | In your entire life, have you had at least 1 drink of any kind of alcohol, not counting small tastes or sips? |
pregnancy_status | Are you currently pregnant? |
race_ethn_hispanic | Are you of Hispanic, Latino, or Spanish origin? |
self_reported_height_centimeters | Centimeters |
self_reported_height_feet | Feet |
self_reported_height_inches | Inches |
self_reported_height_meters | Meters |
self_reported_weight_kgs | How much do you weigh without clothes or shoes? If you are currently pregnant, how much did you weigh before your pregnancy? |
self_reported_weight_lbs | How much do you weigh without clothes or shoes? If you are currently pregnant, how much did you weigh before your pregnancy? |
smoker_cur_stat_2 | Do you now smoke cigarettes? |
vaper_cur_stat | Do you now use electronic cigarettes every day, some days, rarely, or not at all? |
zip_code | Zip Code |
alcohol_date_mdy | - |
alcohol_daysperweek | - |
community_norms1 | - |
community_norms2 | - |
community_norms3 | - |
consentdt_mdy | - |
consent_given | - |
consent_ident | - |
consent_recontact | - |
consent_zip_2 | - |
covid_fatique_2 | - |
covid_pandemic_challenges_abod_2 | - |
covid_pandemic_challenges_food_2 | - |
covid_pandemic_challenges_wate_2 | - |
covid_test_collection_setting | - |
covid_test_performed_location | - |
covid_test_result | - |
covid_test_specimen_collector | - |
covid_test_specimen_type | - |
covid_test_study_setting | - |
covid_test_type | - |
covid_vaccine | - |
covid_vaccine_course | - |
cov_pan_chal_hlth_2 | - |
cov_pan_chal_med_2 | - |
cov_pan_chlng_trans_2 | - |
cov_tst_mthd_824291 | - |
current_apt | - |
current_employment_status_other | - |
current_employment_status_student | - |
edu_years_of_school | - |
elf_reported_disability | - |
employed_ew | - |
employed_healthcare_2 | - |
family_income | - |
fi_afford_balanced_meals | - |
fi_food_money_frequency | - |
flu_vaccinehistind_2 | - |
flu_vaccine_season_3 | - |
gender_identity_term_2 | - |
hi_coverage_type_dfdffd | - |
hlthstat_date_mdy | - |
household_congregate_3 | - |
household_famgen_3 | - |
household_homeless | - |
housing_date_mdy | - |
iden_date_mdy | - |
intake_chw | - |
intake_chw_other | - |
isolate_maintain_job | - |
jobloss_covid19_2 | - |
language_english | - |
language_home___9 | - |
language_home___90 | - |
language_home___99 | - |
language_spoken | - |
med_hx_date_mdy | - |
missed_procedure_2 | - |
positivemonth_covidtest_2 | - |
positiveyear_covidtest_3 | - |
preferred_contact_method_2 | - |
quarantine_maintain_job | - |
race_ethn_asian_detail_3___1 | - |
race_ethn_asian_detail_3___2 | - |
race_ethn_asian_detail_3___3 | - |
race_ethn_asian_detail_3___4 | - |
race_ethn_asian_detail_3___5 | - |
race_ethn_hispanic_detail_2___1 | - |
race_ethn_hispanic_detail_2___2 | - |
race_ethn_hispanic_detail_2___3 | - |
race_ethn_hispanic_detail_2___4 | - |
race_ethn_islander_detail_2___1 | - |
race_ethn_islander_detail_2___10 | - |
race_ethn_islander_detail_2___11 | - |
race_ethn_islander_detail_2___12 | - |
race_ethn_islander_detail_2___13 | - |
race_ethn_islander_detail_2___14 | - |
race_ethn_islander_detail_2___2 | - |
race_ethn_islander_detail_2___3 | - |
race_ethn_islander_detail_2___4 | - |
race_ethn_islander_detail_2___5 | - |
race_ethn_islander_detail_2___6 | - |
race_ethn_islander_detail_2___7 | - |
race_ethn_islander_detail_2___8 | - |
race_ethn_islander_detail_2___9 | - |
race_ethn_race___1 | - |
race_ethn_race___15 | - |
race_ethn_race___2 | - |
race_ethn_race___3 | - |
race_ethn_race___4 | - |
race_ethn_race___5 | - |
race_ethn_race___99 | - |
rcr_awareness1___1 | - |
rcr_awareness1___10 | - |
rcr_awareness1___2 | - |
rcr_awareness1___3 | - |
rcr_awareness1___4 | - |
rcr_awareness1___5 | - |
rcr_awareness1___6 | - |
rcr_awareness1___7 | - |
rcr_awareness1___8 | - |
rcr_awareness1___9 | - |
rcr_awareness2 | - |
recentmonth_covidtest_2 | - |
recentresult_covidtest | - |
recentyear_covidtest_3 | - |
redcap_event_name | - |
redcap_repeat_instance | - |
redcap_repeat_instrument | - |
screener_random | - |
self_reported_health_status_asse | - |
self_reported_health_status_assessment | - |
self_reported_height_coded | - |
self_reported_homebound | - |
self_reported_weight_units_2 | - |
sex_orient_id | - |
smoker_number | - |
smoke_years | - |
sociodem_date_mdy | - |
test_accesseasy_2 | - |
test_accesswhere_2 | - |
test_date_mdy | - |
tested_for_covid | - |
tested_positive_for_covid | - |
test_percvaccuneg_2 | - |
test_percvaccupos_2 | - |
test_resneg_2___1 | - |
test_resneg_2___2 | - |
test_resneg_2___3 | - |
test_resneg_2___4 | - |
test_respos_2___1 | - |
test_respos_2___2 | - |
test_respos_2___3 | - |
trust_coll_2 | - |
trust_cortf_2 | - |
trust_doc_2 | - |
trust_fam_2 | - |
trust_flead_2 | - |
trust_news_2 | - |
trust_social_2 | - |
trust_usgov_2 | - |
vacc_date_mdy | - |
vaccine_avail | - |
vaccine_avail_fam | - |
vaccine_concerns_3___1 | - |
vaccine_concerns_3___10 | - |
vaccine_concerns_3___2 | - |
vaccine_concerns_3___3 | - |
vaccine_concerns_3___4 | - |
vaccine_concerns_3___5 | - |
vaccine_concerns_3___6 | - |
vaccine_concerns_3___7 | - |
vaccine_concerns_3___8 | - |
vaccine_concerns_3___9 | - |
vaccine_concerns_other | - |
vaccine_reasons_3___1 | - |
vaccine_reasons_3___2 | - |
vaccine_reasons_3___3 | - |
vaccine_reasons_3___4 | - |
vaccine_reasons_3___5 | - |
vaccine_reasons_3___6 | - |
vaccine_reasons_3___7 | - |
vaccine_reasons_3___8 | - |
vaccine_reasons_3___9 | - |
vaccine_reasons_other | - |
work_closecont_2 | - |
work_ppe_2 | - |
work_ppe_date_mdy | - |
work_wash_2 | - |