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Study Information

dbGaP Study Accession: phs002618

NIH Institute/Center: NCI

RADx Data Program: RADx-UP

Release Date: 08/31/2023

DOI: 10.60773/s0km-xf55

Study Description: The Rapid Acceleration of Diagnostics for Underserved Populations (RADx-UP) initiative supports supplements to individual NIH awards to increase COVID-19 testing among underserved populations. Leveraging the infrastructure of another project in NYC (National Cancer Institute, R01CA220591, Evaluation of Smoke-Free Housing Policy Impacts on Tobacco Smoke Exposure) and a longstanding set of partnerships among the NYC Housing Authority (NYCHA) and their resident boards, the NYC Health Department, NYC's municipal hospital system, NYU Grossman School of Medicine, and community partnerships, this study executed community-engaged investigations to improve COVID-19 testing for NYCHA residents. NYCHA is the largest public housing authority in North America, with 400,000 official residents living in 15% of the nation's public housing units. NYCHA provides a home to nearly 5% of NYC residents. Developments are spread throughout the city but concentrate in lower-income neighborhoods. Median family income is $20,000, and approximately 90% of NYCHA residents are Black or Hispanic. Apartment turnover is low due to subsidized rental assistance, and developments have organized resident associations, which facilitate capacity for sustained engagement and opportunities for community activation. Aim 1: Develop Sustainable Community Engagement Structures to Guide Current and Future Deployment of Evidence-Based COVID-19 Testing and Vaccination Options for NYC Public Housing Residents. In partnership with a network of community-based organizations (CBOs), NYCHA Resident Associations, and several municipal agencies, a platform for NYCHA-facing initiatives to reduce disparities in COVID-19 morbidity and mortality was established. The platform spanned distinct NYC neighborhoods to give NYCHA residents a voice in shaping COVID-19 testing initiatives. Aim 2: Quantify Inequities in COVID-19 Testing and SARS CoV-2 infection among Public Housing Residents. Triangulation occurred across granular and timely data sources to determine baseline testing and COVID-positivity rates among NYC's public housing resident population, with an emphasis on subgroups with (a) limited access to testing sites, (b) adequate access to testing sites but low testing rates, and (c) high positive test rates. Development-specific maps of testing sites were promulgated and prospective surveillance of testing using routine public health data was established. Aim 3: Discover Facilitators and Barriers to Testing, Isolation, and Follow-Up Care. To guide improvements to COVID-19 testing services, a mixed methods approach was applied to identify barriers to testing, implications and financial burden associated with a positive test result, feasibility of self-isolation for positive results, acceptability of tracing contacts, and privacy concerns. NYCHA residents and CBO partners were engaged in primary data collection and analysis in order to foster a shared understanding of prevention, testing, and management of COVID-19 among public housing residents. Aim 4. Test Community-Informed Strategies to Increase Testing Uptake. Leveraging an array of recently-launched testing initiatives across NYC, including on-site testing clinics, mobile vans, and door-to-door testing, a comparative effectiveness study was conducted to test the impact of a community health worker (CHW) model delivering a menu of community-informed testing options with and without navigation support, including home-testing strategies, on acceptance and uptake of COVID-19 screening tests.

Updated Date: 04/17/2024

Principal Investigator: Thorpe, Lorna

Has Data Files: Yes

Study Domain: At-Home or Over-the-Counter (OTC) Self-Testing; Community Outreach Programs; Mobile Unit Testing; Testing Rate or Uptake; Vaccination Rate or Uptake; Virological Testing

Data Collection Method: Survey

Keywords: COVID-related Health Disparities; Public Housing Residents

Study Design: Interventional or Clinical Trial

Multi-Center Study: No

Data Types: Questionnaire or Survey

Study Start Date: 09/23/2020

Study End Date: 11/30/2022

Species: Human

Estimated Cohort Size: 800

Study Population Focus: Adults; African Americans; Hispanics or Latinos; Lower Socioeconomic Status (SES) Populations

Publication URL: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9707719/; https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9851504/

Acknowledgement Statement: This study was supported through funding, 3R01CA220591-05S2, for the National Cancer Institute (NCI) as part of the RADx-UP program. Partners to be thanked: Community organization partners: Harlem Congregation for Community Initiatives, Henry Street Settlement, CAMBA. Municipal partners: NYC Health Department, NYC Housing Authority, NYC Test & Trace Program. Study participants. Approved users should acknowledge the provision of data access by dbGaP for accession phs002618.v1.p1, and the NIH RADx Data Hub. Approved users should also acknowledge the specific version(s) of the dataset(s) obtained from the NIH RADx Data Hub.

Funding Opportunity Announcement (FOA) Number: PA-20-135

NIH Grant or Contract Number(s): 3R01CA220591-05S2

Consent/Data Use Limitations: General Research Use

Variable Information
Total Variables: 256
Study Variables Information Table
Variable Name
Label
nih_record_idUser ID
nih_raceWhat is your race?
nih_ethnicityAre you of Hispanic or Latino origin? May include Spanish origin.
nih_ageWhat is your age?
nih_sexWhat is your biological sex assigned at birth?
nih_educationWhat is the highest level of education you have achieved outside or in the United States?
nih_zipWhat is your zip code?
nih_employmentPlease specify your employment status.
nih_vape_freqVaping Frequency: Do you now use electronic cigarettes every day, some days, rarely, or not at all?
nih_cig_smoke_freqNicotine Frequency: Do you now smoke cigarettes?
nih_smoking_ynDo you use any tobacco/nicotine products (including cigarettes, cigars, e-cigarettes, etc)?
nih_history_smokingHistory of Smoking
nih_alcohol_ynAlcohol use (Yes or No)
nih_lifetime_use_alcoholIn your entire life, have you had at least 1 drink of any kind of alcohol, not counting small tastes or sips? (Yes or No)
nih_alcohol_frequencyHow often did you have a drink containing alcohol ?
nih_asthmaAsthma
nih_cancer_past_yrCancer diagnosis and/or treatment within the past 12 months
nih_cardiovascular_diseaseCardiovascular disease
nih_chronic_kidney_diseaseChronic kidney disease
nih_diabetesDiabetes
nih_hypertensionHypertension
nih_mental_health_disorderMental health disorder
nih_sickle_cell_diseaseSickle cell disease
nih_pregnancyPregnancy status
nih_immunocompromisedImmunocompromised condition
nih_autoimmAutoimmune disease
nih_copdChronic obstructive pulmonary disease (COPD)
nih_chronic_lungOther chronic lung disease
nih_depressionDepression
nih_alc_sub_abuseAlcohol or substance use disorder
nih_iv_drug_useIntravenous drug use
nih_other_chronic_condOther chronic condition
nih_coughCough
nih_fever_chillsFever or Chills
nih_headacheHeadache
nih_muscle_acheMuscle ache
nih_olfactoryNew loss of taste or smell
nih_fatigueExcessive fatigue
nih_nausea_vomiting_diarrheaNausea, vomiting, or diarrhea
nih_abdom_painAbdominal pain
nih_skin_rashSkin rash
nih_throat_congestion_noseSore throat, congestion or runny nose
nih_other_sympOther
nih_health_statusWould you say that (your) health in general is excellent, very good, good, fair, or poor?
nih_heightWhat is your height in inches?
nih_weightWhat is your weight in pounds?
age_yrsAge For babies less than 1 year old, do not write the age in months. Write 0 as the age. (Years)
bio_sex_birth_2What was your sex assigned at birth on your birth certificate?
cc_asthma_2Asthma
cc_asud_2Alcohol or substance use disorder
cc_autoimm_2Autoimmune disease
cc_cancer_2Cancer diagnosis and/or treatment within the past 12 months
cc_chronickd_2Chronic kidney disease (CKD)
cc_clung_2Other chronic lung disease
cc_copd_2Chronic obstructive pulmonary disease (COPD)
cc_cvd_2Cardiovascular disease (CVD or heart disease)
cc_depression_2Depression
cc_diabetes_2Diabetes
cc_hypertension_2Hypertension (HTN, high blood pressure)
cc_imm_2Immunocompromised condition
cc_intrav_2Intravenous drug use
cc_otherchroniccond_2Other chronic condition
cc_othermh_2Other mental health disorder
cc_sickle_2Sickle Cell Anemia
covid_abpain_2Abdominal Pain
covid_cough_2Cough
covid_fever_2Fever or chills
covid_headache_2Headache
covid_myalgia_2Muscle or body aches
covid_nausea_2Feeling sick to your stomach or vomiting, diarrhea
covid_olfactory_2New loss of taste or smell
covid_other_2Other
covid_runnynose_2Sore throat, congestion or runny nose
covid_skinrash_2Skin Rash
current_employment_statusWe would like to know about what you do -- are you working now, looking for work, retired, keeping house, a student, or something else?
lifetime_use_alcoholIn your entire life, have you had at least 1 drink of any kind of alcohol, not counting small tastes or sips?
pregnancy_statusAre you currently pregnant?
race_ethn_hispanicAre you of Hispanic, Latino, or Spanish origin?
self_reported_height_centimetersCentimeters
self_reported_height_feetFeet
self_reported_height_inchesInches
self_reported_height_metersMeters
self_reported_weight_kgsHow much do you weigh without clothes or shoes? If you are currently pregnant, how much did you weigh before your pregnancy?
self_reported_weight_lbsHow much do you weigh without clothes or shoes? If you are currently pregnant, how much did you weigh before your pregnancy?
smoker_cur_stat_2Do you now smoke cigarettes?
vaper_cur_statDo you now use electronic cigarettes every day, some days, rarely, or not at all?
zip_codeZip Code
alcohol_date_mdy-
alcohol_daysperweek-
community_norms1-
community_norms2-
community_norms3-
consentdt_mdy-
consent_given-
consent_ident-
consent_recontact-
consent_zip_2-
covid_fatique_2-
covid_pandemic_challenges_abod_2-
covid_pandemic_challenges_food_2-
covid_pandemic_challenges_wate_2-
covid_test_collection_setting-
covid_test_performed_location-
covid_test_result-
covid_test_specimen_collector-
covid_test_specimen_type-
covid_test_study_setting-
covid_test_type-
covid_vaccine-
covid_vaccine_course-
cov_pan_chal_hlth_2-
cov_pan_chal_med_2-
cov_pan_chlng_trans_2-
cov_tst_mthd_824291-
current_apt-
current_employment_status_other-
current_employment_status_student-
edu_years_of_school-
elf_reported_disability-
employed_ew-
employed_healthcare_2-
family_income-
fi_afford_balanced_meals-
fi_food_money_frequency-
flu_vaccinehistind_2-
flu_vaccine_season_3-
gender_identity_term_2-
hi_coverage_type_dfdffd-
hlthstat_date_mdy-
household_congregate_3-
household_famgen_3-
household_homeless-
housing_date_mdy-
iden_date_mdy-
intake_chw-
intake_chw_other-
isolate_maintain_job-
jobloss_covid19_2-
language_english-
language_home___9-
language_home___90-
language_home___99-
language_spoken-
med_hx_date_mdy-
missed_procedure_2-
positivemonth_covidtest_2-
positiveyear_covidtest_3-
preferred_contact_method_2-
quarantine_maintain_job-
race_ethn_asian_detail_3___1-
race_ethn_asian_detail_3___2-
race_ethn_asian_detail_3___3-
race_ethn_asian_detail_3___4-
race_ethn_asian_detail_3___5-
race_ethn_hispanic_detail_2___1-
race_ethn_hispanic_detail_2___2-
race_ethn_hispanic_detail_2___3-
race_ethn_hispanic_detail_2___4-
race_ethn_islander_detail_2___1-
race_ethn_islander_detail_2___10-
race_ethn_islander_detail_2___11-
race_ethn_islander_detail_2___12-
race_ethn_islander_detail_2___13-
race_ethn_islander_detail_2___14-
race_ethn_islander_detail_2___2-
race_ethn_islander_detail_2___3-
race_ethn_islander_detail_2___4-
race_ethn_islander_detail_2___5-
race_ethn_islander_detail_2___6-
race_ethn_islander_detail_2___7-
race_ethn_islander_detail_2___8-
race_ethn_islander_detail_2___9-
race_ethn_race___1-
race_ethn_race___15-
race_ethn_race___2-
race_ethn_race___3-
race_ethn_race___4-
race_ethn_race___5-
race_ethn_race___99-
rcr_awareness1___1-
rcr_awareness1___10-
rcr_awareness1___2-
rcr_awareness1___3-
rcr_awareness1___4-
rcr_awareness1___5-
rcr_awareness1___6-
rcr_awareness1___7-
rcr_awareness1___8-
rcr_awareness1___9-
rcr_awareness2-
recentmonth_covidtest_2-
recentresult_covidtest-
recentyear_covidtest_3-
redcap_event_name-
redcap_repeat_instance-
redcap_repeat_instrument-
screener_random-
self_reported_health_status_asse-
self_reported_health_status_assessment-
self_reported_height_coded-
self_reported_homebound-
self_reported_weight_units_2-
sex_orient_id-
smoker_number-
smoke_years-
sociodem_date_mdy-
test_accesseasy_2-
test_accesswhere_2-
test_date_mdy-
tested_for_covid-
tested_positive_for_covid-
test_percvaccuneg_2-
test_percvaccupos_2-
test_resneg_2___1-
test_resneg_2___2-
test_resneg_2___3-
test_resneg_2___4-
test_respos_2___1-
test_respos_2___2-
test_respos_2___3-
trust_coll_2-
trust_cortf_2-
trust_doc_2-
trust_fam_2-
trust_flead_2-
trust_news_2-
trust_social_2-
trust_usgov_2-
vacc_date_mdy-
vaccine_avail-
vaccine_avail_fam-
vaccine_concerns_3___1-
vaccine_concerns_3___10-
vaccine_concerns_3___2-
vaccine_concerns_3___3-
vaccine_concerns_3___4-
vaccine_concerns_3___5-
vaccine_concerns_3___6-
vaccine_concerns_3___7-
vaccine_concerns_3___8-
vaccine_concerns_3___9-
vaccine_concerns_other-
vaccine_reasons_3___1-
vaccine_reasons_3___2-
vaccine_reasons_3___3-
vaccine_reasons_3___4-
vaccine_reasons_3___5-
vaccine_reasons_3___6-
vaccine_reasons_3___7-
vaccine_reasons_3___8-
vaccine_reasons_3___9-
vaccine_reasons_other-
work_closecont_2-
work_ppe_2-
work_ppe_date_mdy-
work_wash_2-
Study Documents
Study Documents Table
Document
Document Name
File Size
Download
Study Documentationphs002618_Project 12_Protocol.pdf406.95 KB
Study Documentationphs002618_Project S21_Protocol.pdf571.97 KB
READMEprojectS21_README.html274.75 KB
READMEproject12_README.html274.41 KB
Study Documentationproject12_DDE_dictionary_origcopy.csv108.61 KB
Data Files
Total Files: 16
Data Files: 6
Metadata Files: 6
Dictionary Files: 4
Study Datasets Table
File Name
File Type
File Format(s)
# of Records
# of Variables
Metadata
Dictionary
projectS21_DATA_origcopy.csvTabular Data - Non-harmonizedcsv592
project12_DATA_transformcopy.csvTabular Data - Harmonizedcsv81
project12_DATA_origcopy.csvTabular Data - Non-harmonizedcsv81
project12_DDE_DATA_origcopy.csvTabular Data - Non-harmonizedcsv81

projectS21_DATA_transformcopy.csvTabular Data - Harmonizedcsv592
projectS21_DDE_DATA_origcopy.csvTabular Data - Non-harmonizedcsv592