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Study Information

dbGaP Study Accession: phs003029

NIH Institute/Center: NIMHD

RADx Data Program: RADx-UP

Release Date: 11/07/2022

DOI: 10.60773/50dx-sm74

Study Description: Unlike other ethnic minority groups, data on the impacts of COVID-19 on Southeast Asian Americans (SEAAs) are limited, oftentimes aggregated with other Asian American groups, thus limiting targeted assistance efforts. Without adequate data to inform best practices around testing and vaccination, many SEAAs become invisible Americans who have difficulties navigating a health care system that inadvertently excludes them. SEAAs have large disparities gap due to a combination of historical trauma, discrimination, harsh immigrant policies, and language barriers. Many are undocumented, hold low wage jobs, and less likely to attend college. Social isolation, anxiety, and financial hardships resulting from COVID-19 have intensified existing health and mental health issues. Lack of disaggregated data and under-reporting of race/ethnicity data, potentially masks the true impacts of COVID-19 on SEAAs and thus exemplifies systemic barriers and structural racism that keep them invisible and hinder targeted assistance. The goal of this project, "Southeast Asians in the U.S.: Health Equity And Research to Understand COVID-19 Stories (SEA US, HEAR US)" was to understand and address multi-level social, ethical, and behavioral implications of COVID-19 testing, vaccination, and its sequelae among Cambodians, Filipinos, Thais, and Vietnamese Americans in Greater Los Angeles through a community-based approach. The central hypothesis was that provision of data-informed and community-informed best practices/guidelines will improve evidence-based COVID-19 testing, vaccination, and its sequelae among their communities. Aim 1: Conduct multi-level formative research using a mixed-methods approach to validate, refine, and tailor existing SEBI measures and potentially develop new, more culturally-relevant, measures for SEAAs. Focus groups with community members (N=30) and key informant interviews with community leaders (N=6) were conducted to confirm cultural relevancy, comprehension, and potential refinement of the existing RADx-UP Common Data Elements (CDEs) and the Social Determinants of Health (SDOH), COVID-19 research findings, and other relevant measures present in the PhenX Toolkit. Aim 2: Collect individual-level data about social, ethical, and behavioral implications (SEBI) of COVID-19 testing, vaccination, and its sequelae among Southeast Asian Americans in the Greater Los Angeles area through a prospective longitudinal study. Spanning 12 months (BL, 3, 6, and 12 months), the survey allowed a better understanding of critical areas in COVID-19 testing and vaccination such as structural, cultural, and intrapersonal barriers and assets in SEAA communities (N=1000). The study isolated barriers that hinder or facilitate testing and vaccination over time, such as lack of accessibility, health literacy, language barriers, self-efficacy, stigma, or lack of social capital. Findings identified areas for potential programs and interventions and/or better access points to underserved groups. Aim 3: Conduct in-depth interviews with community leaders and stakeholders (community-based and faith-based organizations) within SEAA communities to understand their capacity, perceptions, attitudes, beliefs, and intentions towards COVID-19 testing and vaccination. This approach provided insight into organizational infrastructure, community-level, and societal-level factors for COVID-19 testing and vaccinations from the perspectives of community leaders (N=60). The study was able to identify common potential gaps or assets in service delivery and navigation, and areas of resiliency between groups. SEA US, HEAR US studied Cambodians, Filipinos, Thais, and Vietnamese Americans at a time when health equity is a challenge and issues of structural discrimination and anti-Asian hate is at its peak. SEAAs are invisible Americans who will continue to experience health disparities and be structurally discriminated against in the absence of culturally targeted, relevant assistance. SEBISEAA gathered community-driven, culturally-sensitive data to inform existing and future COVID-19 programs and policies that improve necessary resources and support for these sub-ethnic AA communities.

Updated Date: 11/07/2022

Principal Investigator: Kwan, Patchareeya Pumpuang

Has Data Files: Yes

Study Domain: Mental Health; Pandemic Perceptions or Decision-Making; Social Determinants of Health; Testing Rate or Uptake; Vaccination Rate or Uptake; Virological Testing

Data Collection Method: Interview or Focus Group; Survey

Keywords: Aggregate Data, Individual-Level Data; Cambodians; Filipinos; Southeast Asian Americans; Thais; Vietnamese Americans

Study Design: Longitudinal Cohort

Multi-Center Study: No

Study Sites: CSULA; OCAPICA; SIPA; Thai CDC

Data Types: Behavioral; Cognitive; Environmental; Family History; Physical Activity; Psychological; Questionnaire or Survey; Social

Study Start Date: 01/01/2022

Study End Date: 11/30/2023

Species: Human

Sample Size: 1094

Study Population Focus: Adults; Asians; Older Adults or Elderly; Racial or Ethnic Minorities

Acknowledgement Statement: This study was supported through funding, 5U01MD017434-02, for the National Institute on Minority Health and Health Disparities (NIMHD) as part of the RADx-UP program. In addition to the National Institutes of Health (NIH) and NIMHD, data gathered as part of this study are a result of the dedication, hard work, and commitment to health equity and improvements in quality of life by esteemed individuals at the following institutions, community based organizations, and communities: California State University, Northridge (CSUN), California State University, Los Angeles (CSULA), Orange County Asian Pacific Islander Community Alliance (OCAPICA), Search to Involve Pilipino Americans (SIPA), Thai Community Development Center (Thai CDC), United Cambodian Community of Long Beach (UCC), and the Cambodian, Filipino, Thai, and Vietnamese American communities and their respective community-based leaders of Greater Los Angeles. Approved users should acknowledge the provision of data access by dbGaP for accession phs003029.v1.p1, and the NIH RADx Data Hub. Approved users should also acknowledge the specific version(s) of the dataset(s) obtained from the NIH RADx Data Hub.

Funding Opportunity Announcement (FOA) Number: RFA-OD-21-009

NIH Grant or Contract Number(s): 5U01MD017434-02

Consent/Data Use Limitations: General Research Use

Variable Information
Total Variables: 338
Study Variables Information Table
Variable Name
Label
nih_record_idUser ID
nih_raceWhat is your race?
nih_ethnicityAre you of Hispanic or Latino origin? May include Spanish origin.
nih_ageWhat is your age?
nih_sexWhat is your biological sex assigned at birth?
nih_educationWhat is the highest level of education you have achieved outside or in the United States?
nih_employmentPlease specify your employment status.
nih_insuranceWhat kind of health insurance do you have?
nih_disabilityDo you have a disability, including serious physical or mental conditions, that interfere with your ability to carry out daily activities?
nih_vape_freqVaping Frequency: Do you now use electronic cigarettes every day, some days, rarely, or not at all?
nih_cig_smoke_freqNicotine Frequency: Do you now smoke cigarettes?
nih_smoking_ynDo you use any tobacco/nicotine products (including cigarettes, cigars, e-cigarettes, etc)?
nih_history_smokingHistory of Smoking
nih_alcohol_ynAlcohol use (Yes or No)
nih_lifetime_use_alcoholIn your entire life, have you had at least 1 drink of any kind of alcohol, not counting small tastes or sips? (Yes or No)
nih_alcohol_frequencyHow often did you have a drink containing alcohol ?
nih_asthmaAsthma
nih_cancer_past_yrCancer diagnosis and/or treatment within the past 12 months
nih_cardiovascular_diseaseCardiovascular disease
nih_chronic_kidney_diseaseChronic kidney disease
nih_diabetesDiabetes
nih_hypertensionHypertension
nih_mental_health_disorderMental health disorder
nih_sickle_cell_diseaseSickle cell disease
nih_pregnancyPregnancy status
nih_immunocompromisedImmunocompromised condition
nih_autoimmAutoimmune disease
nih_copdChronic obstructive pulmonary disease (COPD)
nih_chronic_lungOther chronic lung disease
nih_depressionDepression
nih_alc_sub_abuseAlcohol or substance use disorder
nih_iv_drug_useIntravenous drug use
nih_other_chronic_condOther chronic condition
nih_coughCough
nih_fever_chillsFever or Chills
nih_diff_breathShortness of breath or difficulty breathing
nih_headacheHeadache
nih_muscle_acheMuscle ache
nih_olfactoryNew loss of taste or smell
nih_fatigueExcessive fatigue
nih_nausea_vomiting_diarrheaNausea, vomiting, or diarrhea
nih_abdom_painAbdominal pain
nih_skin_rashSkin rash
nih_throat_congestion_noseSore throat, congestion or runny nose
nih_other_sympOther
nih_health_statusWould you say that (your) health in general is excellent, very good, good, fair, or poor?
nih_heightWhat is your height in inches?
nih_weightWhat is your weight in pounds?
age_yrsAge For babies less than 1 year old, do not write the age in months. Write 0 as the age. (Years)
bio_sex_birth_2What was your sex assigned at birth on your birth certificate?
cc_asthma_2Asthma
cc_asud_2Alcohol or substance use disorder
cc_autoimm_2Autoimmune disease
cc_cancer_2Cancer diagnosis and/or treatment within the past 12 months
cc_chronickd_2Chronic kidney disease (CKD)
cc_clung_2Other chronic lung disease
cc_copd_2Chronic obstructive pulmonary disease (COPD)
cc_cvd_2Cardiovascular disease (CVD or heart disease)
cc_depression_2Depression
cc_diabetes_2Diabetes
cc_hypertension_2Hypertension (HTN, high blood pressure)
cc_imm_2Immunocompromised condition
cc_intrav_2Intravenous drug use
cc_otherchroniccond_2Other chronic condition
cc_othermh_2Other mental health disorder
cc_sickle_2Sickle Cell Anemia
covid_abpain_2Abdominal Pain
covid_cough_2Cough
covid_diffbreath_2Shortness of breath or difficulty breathing
covid_fever_2Fever or chills
covid_headache_2Headache
covid_myalgia_2Muscle or body aches
covid_nausea_2Feeling sick to your stomach or vomiting, diarrhea
covid_olfactory_2New loss of taste or smell
covid_other_2Other
covid_runnynose_2Sore throat, congestion or runny nose
covid_skinrash_2Skin Rash
current_employment_statusWe would like to know about what you do -- are you working now, looking for work, retired, keeping house, a student, or something else?
hi_coverage_typeWhat is the primary kind of health insurance or health care plan that you have now? (Exclude plans that pay for only one type of Service (such as, nursing home care, accidents, family planning, or dental care) and plans that only provide extra cash when hospitalized. )
lifetime_use_alcoholIn your entire life, have you had at least 1 drink of any kind of alcohol, not counting small tastes or sips?
pregnancy_statusAre you currently pregnant?
race_ethn_hispanicAre you of Hispanic, Latino, or Spanish origin?
self_reported_disabilityDo you have a disability that interferes with your ability to carry out daily activities? Examples of daily activities include walking, climbing stairs, shopping, balancing a checkbook, bathing or dressing.
self_reported_height_centimetersCentimeters
self_reported_height_feetFeet
self_reported_height_inchesInches
self_reported_height_metersMeters
self_reported_weight_kgsHow much do you weigh without clothes or shoes? If you are currently pregnant, how much did you weigh before your pregnancy?
self_reported_weight_lbsHow much do you weigh without clothes or shoes? If you are currently pregnant, how much did you weigh before your pregnancy?
smoker_cur_stat_2Do you now smoke cigarettes?
vaper_cur_statDo you now use electronic cigarettes every day, some days, rarely, or not at all?
alcohol_date_mdy-
alcohol_daysperweek-
alcohol_drinksperday-
consentdt_mdy-
consent_given-
consent_ident-
consent_recontact-
consent_zip_2-
covid_barrier___1-
covid_barrier___2-
covid_barrier___3-
covid_barrier___4-
covid_barrier___5-
covid_barrier___6-
covid_barrier___7-
covid_barrier___8-
covid_barrier___9-
covid_barrier___98-
covid_barrier___99-
covid_childcare___1-
covid_childcare___2-
covid_childcare___3-
covid_childcare___4-
covid_childcare___5-
covid_childcare___6-
covid_childcare___99-
covid_fatique_2-
covid_had-
covid_iso_chal___1-
covid_iso_chal___2-
covid_iso_chal___3-
covid_iso_chal___4-
covid_iso_chal___5-
covid_iso_chal___6-
covid_iso_chal___7-
covid_iso_chal___8-
covid_iso_chal___9-
covid_iso_chal___98-
covid_iso_chal___99-
covid_pandemic_challenges_abod_2-
covid_pandemic_challenges_food_2-
covid_pandemic_challenges_wate_2-
covid_protect___1-
covid_protect___2-
covid_protect___3-
covid_protect___4-
covid_protect___5-
covid_protect___99-
covid_pto-
covid_vaccine-
cov_pan_chal_hlth_2-
cov_pan_chal_med_2-
cov_pan_chlng_trans_2-
cov_tst_mthd_2-
cyberbully_others-
cyberbully_self-
cyberbully_socialmedia-
discrimination_ethnicity-
edu_years_of_school-
eligible_plans-
employed_ew-
employed_healthcare_2-
ethnicity_assumecovid-
ethnicity_covidlikely-
ethnicity_dangerous-
ethnicity_healthunequal-
ethnicity_jobloss-
ethnicity_mediabias-
ethnicity_sincecovid-
family_income-
fi_afford_balanced_meals-
fi_change_diet-
fi_change_diet_frequency-
fi_food_money_frequency-
fi_high_quality_2-
fi_hungry-
flu_vaccinehistind_2-
flu_vaccine_season_3-
gender_identity_term_2-
hi_loss_covid-
hlthstat_date_mdy-
household_congregate_3-
household_famgen_3-
household_homeless-
household_isolate-
housing_concerns-
housing_date_mdy-
iden_date_mdy-
idrug_use_2-
index-
isolate_maintain_job-
jobloss_covid19_2-
language_home___1-
language_home___18-
language_home___2-
language_home___22-
language_home___25-
language_home___3-
language_home___4-
language_home___5-
language_home___7-
language_home___9-
language_home___90-
language_home___99-
language_pref-
mari_use_2-
mc_access_change-
med_hx_date_mdy-
mh_access_change-
missed_procedure_2-
pdrg_use_2-
positivemonth_covidtest_2-
positiveyear_covidtest_3-
quarantine_maintain_job-
race_ethn_asian_detail_3___1-
race_ethn_asian_detail_3___10-
race_ethn_asian_detail_3___2-
race_ethn_asian_detail_3___21-
race_ethn_asian_detail_3___22-
race_ethn_asian_detail_3___3-
race_ethn_asian_detail_3___4-
race_ethn_asian_detail_3___5-
race_ethn_asian_detail_3___99-
race_ethn_hispanic_detail_2___1-
race_ethn_hispanic_detail_2___2-
race_ethn_hispanic_detail_2___3-
race_ethn_hispanic_detail_2___4-
race_ethn_hispanic_detail_2___5-
race_ethn_hispanic_detail_2___6-
race_ethn_hispanic_detail_2___7-
race_ethn_islander_detail_2___1-
race_ethn_islander_detail_2___10-
race_ethn_islander_detail_2___11-
race_ethn_islander_detail_2___12-
race_ethn_islander_detail_2___13-
race_ethn_islander_detail_2___14-
race_ethn_islander_detail_2___2-
race_ethn_islander_detail_2___3-
race_ethn_islander_detail_2___4-
race_ethn_islander_detail_2___5-
race_ethn_islander_detail_2___6-
race_ethn_islander_detail_2___7-
race_ethn_islander_detail_2___8-
race_ethn_islander_detail_2___9-
race_ethn_islander_detail_2___99-
race_ethn_race___1-
race_ethn_race___15-
race_ethn_race___2-
race_ethn_race___3-
race_ethn_race___4-
race_ethn_race___5-
race_ethn_race___99-
recentmonth_covidtest_2-
recentresult_covidtest-
recentyear_covidtest_3-
redcap_event_name-
redcap_repeat_instance-
redcap_repeat_instrument-
selfmental_parent-
selfphysical_parent-
self_reported_health_status_assessment-
self_reported_height_coded-
self_reported_weight_units_2-
sex_orient_id-
smoker_number-
smoke_years-
sociodem_date_mdy-
stable_housing-
sym_date_mdy-
symptoms_ongoing-
test_date_mdy-
tested_for_covid-
tested_positive_for_covid-
test_pbenearound_2-
test_pbeneexposed_2-
test_pbenepos_2-
test_pbenesafe_2-
test_pbenework_2-
test_pbeneworry_2-
test_percvaccuneg_2-
test_percvaccupos_2-
test_priskcontact_2-
test_priskknow_2-
test_prisklater_2-
test_prisknohelp_2-
test_prisknosymp_2-
test_priskouch_2-
test_resneg_2___1-
test_resneg_2___2-
test_resneg_2___3-
test_resneg_2___4-
test_resneg_2___99-
test_respos_2___1-
test_respos_2___2-
test_respos_2___3-
test_respos_2___99-
vacc_date_mdy-
vaccine_booster-
vaccine_children_concerns___1-
vaccine_children_concerns___10-
vaccine_children_concerns___11-
vaccine_children_concerns___12-
vaccine_children_concerns___13-
vaccine_children_concerns___14-
vaccine_children_concerns___15-
vaccine_children_concerns___16-
vaccine_children_concerns___17-
vaccine_children_concerns___2-
vaccine_children_concerns___3-
vaccine_children_concerns___4-
vaccine_children_concerns___5-
vaccine_children_concerns___6-
vaccine_children_concerns___8-
vaccine_children_concerns___9-
vaccine_children_concerns___99-
vaccine_concerns_3___1-
vaccine_concerns_3___2-
vaccine_concerns_3___3-
vaccine_concerns_3___4-
vaccine_concerns_3___5-
vaccine_concerns_3___6-
vaccine_concerns_3___7-
vaccine_concerns_3___8-
vaccine_concerns_3___9-
vaccine_dose-
vaccine_edu_post-
vaccine_edu_pre-
vaccine_literacy-
vaccine_manufac_2-
vaccine_options-
vaccine_prev_expos-
vaccine_reasons_3___1-
vaccine_reasons_3___10-
vaccine_reasons_3___11-
vaccine_reasons_3___2-
vaccine_reasons_3___3-
vaccine_reasons_3___5-
vaccine_reasons_3___6-
vaccine_reasons_3___7-
vaccine_reasons_3___8-
vaccine_rec1_dte-
vaccine_requirement-
vaper_years-
work_closecont_2-
work_ppe_2-
work_ppe_date_mdy-
work_wash_2-
Study Documents
Study Documents Table
Document
Document Name
File Size
Download
Study Documentationphs003029_Project 99_Protocol.pdf171.64 KB
READMEproject99_README.html274.82 KB
Data Files
Total Files: 6
Data Files: 2
Metadata Files: 2
Dictionary Files: 2
Study Datasets Table
File Name
File Type
File Format(s)
# of Records
# of Variables
Metadata
Dictionary
project99_DATA_origcopy.csvTabular Data - Non-harmonizedcsv1094
project99_DATA_transformcopy.csvTabular Data - Harmonizedcsv1094