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Study Information

dbGaP Study Accession: phs002526

NIH Institute/Center: NIMHD

RADx Data Program: RADx-UP

DOI: 10.60773/eya4-rh89

Release Date: 08/29/2023

Study Description: The long-term goal of this project was to eliminate COVID-19 disparities among Hawaii's racial/ethnically diverse yet vulnerable populations including Native Hawaiian and other Pacific Islanders (NHPI) living in rural and underserved communities. This relied on integrating innovative SARS-CoV-2 testing capacity with novel community-specific messaging and education. Compounded by long-standing health disparities and socioeconomic challenges, NHPIs suffer from increased infection and mortality rates attributed to COVID-19. To date, NHPIs rank among the highest disproportionately burdened by SARS-CoV-2 in the U.S. With the nation's highest Rt, a basic reproductive metric indicating the degree of viral spread, Hawaii's disaggregated NHPI data reveal further disparities. Preliminary testing data collected by the Waianae Coast Comprehensive Health Center (WCCHC), Hawaii's largest federally funded community health center, indicated a significant deficiency in testing uptake, especially among Pacific Islanders. Under-representative coverage of testing among youth (ages 5-19 years old) in NHPI communities was observed, despite their higher than average infection rate. Other factors, including slow testing turnaround time and untested asymptomatic cases, complicated efforts to contain further community spread. Given the looming public health concerns around the re-opening of businesses and schools, these gaps highlighted the critical need for innovative approaches to effecting behavioral change coupled with novel testing strategies to enhance access to all community members, including school-aged children/youth. Fortunately, existing partnerships in Hawaii's culturally diverse populations offered a unique opportunity to augment the COVID-19 response with community knowledge and resilience. It was hypothesized that community-contextualized messaging disseminated by novel healthcare-school partnerships, coupled with a robust community and patient-centered testing strategy, would increase reach, access, uptake, and impact for COVID-19 testing in vulnerable populations. To test this hypothesis, the multidisciplinary team: (1) evaluated SARS-CoV-2 testing data, identified gaps and barriers in testing, and augmented community testing capacity to increase uptake, and (2) optimized and implemented community-informed COVID-19 messaging and education with a novel community healthcare-school network partnership in the NHPI population across Hawaii. Building on the parent Ola HAWAII grant, this project leveraged existing Community Engagement, Biostatistics, and Administrative Cores with the NHIP partnerships to augment the RADx-UP Coordinating and Data Collection Center for common evaluation metrics on COVID-19 testing-related outcomes and implementation. This project provided the foundation for an engaged community network primed for disseminating anticipated vaccines in Hawaii's highest risk populations. Given the urgency to both improve public health safety and re-open schools, results from this project offered insights into an integrated model or toolkit from which health clinics and schools in underserved and vulnerable communities across the country might actively participate in abating the pandemic.

Updated Date: 04/17/2024

Principal Investigator: Hedges, Jerris Robert

Has Data Files: Yes

Study Domain: Community Outreach Programs; Rapid Diagnostic Test (RDT); Social Determinants of Health; Vaccination Rate or Uptake

Data Collection Method: Survey

Keywords: Access to Care

Study Design: Longitudinal Cohort

Multi-Center Study: No

Data Types: Questionnaire or Survey; Social

Study Start Date: 09/22/2020

Study End Date: 06/30/2022

Species: Human

Estimated Cohort Size: 7000

Study Population Focus: Adults; Children; Native Hawaiians or Other Pacific Islanders; Underserved or Vulnerable Populations

Study Website URL: https://radx-up.org/project-spotlight/community-driven-approach-to-mitigate-covid-19-disparities-in-hawaiis-vulnerable-populations/

Publication URL: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10341770/; https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9144874/; https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9229995/; https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9506487/; https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9533101/; https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9707710/

Acknowledgement Statement: This study was supported through funding, 3U54MD007601-35S2, for the National Institute on Minority Health and Health Disparities (NIMHD) as part of the RADx-UP program. Approved users should acknowledge the provision of data access by dbGaP for accession phs002526.v1.p1, and the NIH RADx Data Hub. Approved users should also acknowledge the specific version(s) of the dataset(s) obtained from the NIH RADx Data Hub.

Funding Opportunity Announcement (FOA) Number: PA-18-906

NIH Grant or Contract Number(s): 3U54MD007601-35S2

Consent/Data Use Limitations: General Research Use

Variable Information
Total Variables: 264
Study Variables Information Table
Variable Name
Label
nih_record_idUser ID
nih_raceWhat is your race?
nih_ethnicityAre you of Hispanic or Latino origin? May include Spanish origin.
nih_ageWhat is your age?
nih_sexWhat is your biological sex assigned at birth?
nih_educationWhat is the highest level of education you have achieved outside or in the United States?
nih_zipWhat is your zip code?
nih_employmentPlease specify your employment status.
nih_insuranceWhat kind of health insurance do you have?
nih_disabilityDo you have a disability, including serious physical or mental conditions, that interfere with your ability to carry out daily activities?
nih_vape_freqVaping Frequency: Do you now use electronic cigarettes every day, some days, rarely, or not at all?
nih_cig_smoke_freqNicotine Frequency: Do you now smoke cigarettes?
nih_smoking_ynDo you use any tobacco/nicotine products (including cigarettes, cigars, e-cigarettes, etc)?
nih_history_smokingHistory of Smoking
nih_alcohol_ynAlcohol use (Yes or No)
nih_lifetime_use_alcoholIn your entire life, have you had at least 1 drink of any kind of alcohol, not counting small tastes or sips? (Yes or No)
nih_alcohol_frequencyHow often did you have a drink containing alcohol ?
nih_asthmaAsthma
nih_cancer_past_yrCancer diagnosis and/or treatment within the past 12 months
nih_cardiovascular_diseaseCardiovascular disease
nih_chronic_kidney_diseaseChronic kidney disease
nih_diabetesDiabetes
nih_hypertensionHypertension
nih_mental_health_disorderMental health disorder
nih_sickle_cell_diseaseSickle cell disease
nih_pregnancyPregnancy status
nih_immunocompromisedImmunocompromised condition
nih_autoimmAutoimmune disease
nih_copdChronic obstructive pulmonary disease (COPD)
nih_chronic_lungOther chronic lung disease
nih_depressionDepression
nih_alc_sub_abuseAlcohol or substance use disorder
nih_iv_drug_useIntravenous drug use
nih_other_chronic_condOther chronic condition
nih_coughCough
nih_fever_chillsFever or Chills
nih_diff_breathShortness of breath or difficulty breathing
nih_headacheHeadache
nih_muscle_acheMuscle ache
nih_olfactoryNew loss of taste or smell
nih_fatigueExcessive fatigue
nih_nausea_vomiting_diarrheaNausea, vomiting, or diarrhea
nih_abdom_painAbdominal pain
nih_skin_rashSkin rash
nih_throat_congestion_noseSore throat, congestion or runny nose
nih_other_sympOther
nih_health_statusWould you say that (your) health in general is excellent, very good, good, fair, or poor?
nih_heightWhat is your height in inches?
nih_weightWhat is your weight in pounds?
age_yrsAge For babies less than 1 year old, do not write the age in months. Write 0 as the age. (Years)
bio_sex_birth_2What was your sex assigned at birth on your birth certificate?
cc_asthma_2Asthma
cc_asud_2Alcohol or substance use disorder
cc_autoimm_2Autoimmune disease
cc_cancer_2Cancer diagnosis and/or treatment within the past 12 months
cc_chronickd_2Chronic kidney disease (CKD)
cc_clung_2Other chronic lung disease
cc_copd_2Chronic obstructive pulmonary disease (COPD)
cc_cvd_2Cardiovascular disease (CVD or heart disease)
cc_depression_2Depression
cc_diabetes_2Diabetes
cc_hypertension_2Hypertension (HTN, high blood pressure)
cc_imm_2Immunocompromised condition
cc_intrav_2Intravenous drug use
cc_otherchroniccond_2Other chronic condition
cc_othermh_2Other mental health disorder
cc_sickle_2Sickle Cell Anemia
covid_abpain_2Abdominal Pain
covid_cough_2Cough
covid_diffbreath_2Shortness of breath or difficulty breathing
covid_fever_2Fever or chills
covid_headache_2Headache
covid_myalgia_2Muscle or body aches
covid_nausea_2Feeling sick to your stomach or vomiting, diarrhea
covid_olfactory_2New loss of taste or smell
covid_other_2Other
covid_runnynose_2Sore throat, congestion or runny nose
covid_skinrash_2Skin Rash
current_employment_statusWe would like to know about what you do -- are you working now, looking for work, retired, keeping house, a student, or something else?
hi_coverage_typeWhat is the primary kind of health insurance or health care plan that you have now? (Exclude plans that pay for only one type of Service (such as, nursing home care, accidents, family planning, or dental care) and plans that only provide extra cash when hospitalized. )
lifetime_use_alcoholIn your entire life, have you had at least 1 drink of any kind of alcohol, not counting small tastes or sips?
pregnancy_statusAre you currently pregnant?
race_ethn_hispanicAre you of Hispanic, Latino, or Spanish origin?
self_reported_disabilityDo you have a disability that interferes with your ability to carry out daily activities? Examples of daily activities include walking, climbing stairs, shopping, balancing a checkbook, bathing or dressing.
self_reported_height_feetFeet
self_reported_height_inchesInches
self_reported_weight_lbsHow much do you weigh without clothes or shoes? If you are currently pregnant, how much did you weigh before your pregnancy?
smoker_cur_stat_2Do you now smoke cigarettes?
vaper_cur_statDo you now use electronic cigarettes every day, some days, rarely, or not at all?
zip_codeZip Code
alcohol_date_mdy-
alcohol_daysperweek-
alcohol_drinksperday-
consentdt_mdy-
consent_given-
consent_zip_2-
covid_fatique_2-
covid_had-
covid_pandemic_challenges_abod_2-
covid_pandemic_challenges_food_2-
covid_pandemic_challenges_wate_2-
covid_test_approval-
covid_test_collect_datetime-
covid_test_collection_setting-
covid_test_date_mdy-
covid_test_performed_location-
covid_test_result-
covid_test_result_datetime-
covid_test_result_sent_datetime-
covid_test_specimen_collector-
covid_test_specimen_type-
covid_test_study_setting-
covid_test_tar_dis_stat_2___1-
covid_test_tar_dis_stat_2___6-
covid_test_type-
covid_vaccine-
covid_vaccine_course-
cov_pan_chal_hlth_2-
cov_pan_chal_med_2-
cov_pan_chlng_trans_2-
cov_tst_mthd_2-
data_source-
drg_date_mdy-
edu_years_of_school-
employed_ew-
employed_healthcare_2-
family_income-
fi_afford_balanced_meals-
fi_change_diet-
fi_change_diet_frequency-
fi_eat_less-
fi_food_money_frequency-
fi_high_quality_2-
fi_hungry-
flu_vaccinehistind_2-
flu_vaccine_season_3-
hi_loss_covid-
hlthstat_date_mdy-
household_famgen_3-
household_homeless-
housing_concerns-
housing_date_mdy-
index-
isolate_maintain_job-
jobloss_covid19_2-
language_english-
language_home___1-
language_home___5-
language_home___6-
language_home___7-
language_home___9-
language_home___90-
language_home___99-
med_date_mdy-
med_hx_date_mdy-
missed_procedure_2-
positivemonth_covidtest_2-
positiveyear_covidtest_3-
quarantine_maintain_job-
race_ethn_asian_detail_3___1-
race_ethn_asian_detail_3___2-
race_ethn_asian_detail_3___3-
race_ethn_asian_detail_3___4-
race_ethn_asian_detail_3___5-
race_ethn_hispanic_detail_2___1-
race_ethn_hispanic_detail_2___2-
race_ethn_hispanic_detail_2___3-
race_ethn_hispanic_detail_2___4-
race_ethn_islander_detail_2___1-
race_ethn_islander_detail_2___10-
race_ethn_islander_detail_2___11-
race_ethn_islander_detail_2___12-
race_ethn_islander_detail_2___13-
race_ethn_islander_detail_2___2-
race_ethn_islander_detail_2___3-
race_ethn_islander_detail_2___4-
race_ethn_islander_detail_2___5-
race_ethn_islander_detail_2___6-
race_ethn_islander_detail_2___7-
race_ethn_islander_detail_2___8-
race_ethn_islander_detail_2___9-
race_ethn_race___1-
race_ethn_race___15-
race_ethn_race___2-
race_ethn_race___3-
race_ethn_race___4-
race_ethn_race___5-
recentmonth_covidtest_2-
recentresult_covidtest-
recentyear_covidtest_3-
redcap_event_name-
redcap_repeat_instance-
redcap_repeat_instrument-
self_reported_health_status_assessment-
self_reported_height_coded-
self_reported_weight_units_2-
smoker_number-
smoke_years-
sociodem_date_mdy-
sociodemographics_complet-
stable_housing-
sym_date_mdy-
take_presc_meds-
test_accesseasy_2-
test_accesswhere_2-
test_date_mdy-
tested_for_covid-
tested_positive_for_covid-
test_intent_2-
test_pbenearound_2-
test_pbeneexposed_2-
test_pbenepos_2-
test_pbenesafe_2-
test_pbenework_2-
test_pbeneworry_2-
test_percvaccuneg_2-
test_percvaccupos_2-
test_priskcontact_2-
test_priskknow_2-
test_prisklater_2-
test_prisknohelp_2-
test_prisknosymp_2-
test_priskouch_2-
test_resneg_2___1-
test_resneg_2___2-
test_resneg_2___3-
test_resneg_2___4-
test_respos_2___1-
test_respos_2___2-
test_respos_2___3-
trust_coll_2-
trust_cortf_2-
trust_doc_2-
trust_fam_2-
trust_flead_2-
trust_news_2-
trust_social_2-
trust_usgov_2-
vacc_date_mdy-
vaccine_avail-
vaccine_concerns_3___1-
vaccine_concerns_3___10-
vaccine_concerns_3___2-
vaccine_concerns_3___3-
vaccine_concerns_3___4-
vaccine_concerns_3___5-
vaccine_concerns_3___6-
vaccine_concerns_3___7-
vaccine_concerns_3___8-
vaccine_concerns_3___9-
vaccine_reasons_3___1-
vaccine_reasons_3___2-
vaccine_reasons_3___3-
vaccine_reasons_3___4-
vaccine_reasons_3___5-
vaccine_reasons_3___6-
vaccine_reasons_3___7-
vaccine_reasons_3___8-
vaccine_reasons_3___9-
vaper_years-
work_closecont_2-
work_ppe_2-
work_ppe_date_mdy-
work_wash_2-
Study Documents
Study Documents Table
Document
Document Name
File Size
Download
READMEproject26_README.html275.00 KB
Study Documentationproject26_DDE_dictionary_origcopy.xlsx16.80 KB
Study Documentationphs002526_Project 26_Program Proposal.pdf337.90 KB
Data Files
Total Files: 8
Data Files: 3
Metadata Files: 3
Dictionary Files: 2
Study Datasets Table
File Name
File Type
File Format(s)
# of Records
# of Variables
Metadata
Dictionary
project26_DATA_origcopy.csvTabular Data - Non-harmonizedcsv23111
project26_DDE_DATA_origcopy.csvTabular Data - Non-harmonizedcsv23111

project26_DATA_transformcopy.csvTabular Data - Harmonizedcsv23111