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Study Information

dbGaP Study Accession: phs002568

NIH Institute/Center: NINR

RADx Data Program: RADx-UP

Release Date: 08/29/2023

DOI: 10.60773/3gd9-km98

Study Description: The overall goal of Reaching Communities through the Design of Information Visualizations (ReDIVis) Toolbox for Return of COVID-19 Results (RCR) was to decrease health disparities related to COVID-19 by enabling widespread use of culturally congruent and health literate infographics to return the results of SARS-CoV-2 diagnostic and antibody testing in a manner that supports comprehension of the results, informs decision-making, and motivates appropriate behaviors. In collaboration with a community partner, the Association to Benefit Children, mixed-methods research design was used to achieve the following specific aims: 1. Advance understanding of the factors that influence comprehension and use of the results of SARS- CoV-2 diagnostic and antibody testing in underserved and vulnerable populations. 2. Collaborate with underserved and vulnerable populations to design infographics for returning the results of SARS-CoV-2 diagnostic and antibody testing in a format that maximizes comprehension, informs decision making, and motivates action. 3. Develop, implement, evaluate, and disseminate the ReDIVis Toolbox for returning the results of SARS-CoV-2 diagnostic and antibody testing. ReDIVis Toolbox-RCR builds upon substantial preliminary work in community engagement, lay-person science, system development and evaluation, and information visualization as well as existing infrastructure: (a) a research cohort of Latino adults, and (b) the Visualization Design Studio of the Precision in Symptom Self-Management Center. Informed by seven public health ethics principles, ReDIVis Toolbox-RCR research activities (focus groups, interviews, surveys, participatory design sessions, usability testing) resulted in the web-based ReDIVis Toolbox that includes: (a) infographics in English and Spanish for returning SARS-CoV-2 test results; (b) documents to support design, implementation, and evaluation of infographics; and (c) software to enable the creation of tailored culturally congruent and health literate infographics. Within the defined areas of research interests in NOT-OD-20-119, ReDIVis Toolbox-RCR directly responds to the need for SARS-CoV-2 test results templates and toolkits designed in collaboration with communities and strategies and resources to increase use and utility of test results. In addition, ReDIVis Toolbox-RCR research activities allowed for advanced understanding of the social, ethical, and behavioral implications of how test results are interpreted and used; specifically, how the results influence decision-making and COVID-19 mitigation behaviors (e.g., social distancing, self-isolation, mask wearing, and vaccination, when available). Moreover, this study involved interaction with other RADx-UP grantees to enhance the generalizability of the ReDIVis Toolbox.

Updated Date: 04/10/2024

Principal Investigator: Bakken, Suzanne

Has Data Files: Yes

Study Domain: Health Behaviors; Serological or Antibody Testing; Virological Testing

Data Collection Method: Interview or Focus Group; Molecular Nucleic Acid or PCR Testing Device; Survey

Keywords: COVID Outreach/Education; Health Literacy; Testing Disparities

Study Design: Mixed Methods

Multi-Center Study: Yes

Study Sites: Columbia University; Association to Benefit Children

Data Types: Questionnaire or Survey

Study Start Date: 11/01/2020

Study End Date: 10/31/2022

Species: Human

Estimated Cohort Size: 1000

Study Population Focus: Adults; Hispanics or Latinos; Underserved or Vulnerable Populations

Acknowledgement Statement: This study was supported through funding, 3P30NR016587-05S3, for the National Institute of Nursing Research (NINR) as part of the RADx-UP program. Data collection was supported by Reaching Communities Through Design of Information Visualizations (ReDIVis) Toolbox for Return of COVID-19 Results (RCR). We thank our research participants for contributing to this research. Approved users should acknowledge the provision of data access by dbGaP for accession phs002568.v1.p1, and the NIH RADx Data Hub. Approved users should also acknowledge the specific version(s) of the dataset(s) obtained from the NIH RADx Data Hub.

Funding Opportunity Announcement (FOA) Number: RFA-NR-16-002

NIH Grant or Contract Number(s): 3P30NR016587-05S3

Consent/Data Use Limitations: General Research Use

Variable Information
Total Variables: 376
Study Variables Information Table
Variable Name
Label
nih_record_idUser ID
nih_raceWhat is your race?
nih_ethnicityAre you of Hispanic or Latino origin? May include Spanish origin.
nih_ageWhat is your age?
nih_sexWhat is your biological sex assigned at birth?
nih_educationWhat is the highest level of education you have achieved outside or in the United States?
nih_zipWhat is your zip code?
nih_employmentPlease specify your employment status.
nih_insuranceWhat kind of health insurance do you have?
nih_disabilityDo you have a disability, including serious physical or mental conditions, that interfere with your ability to carry out daily activities?
nih_vape_freqVaping Frequency: Do you now use electronic cigarettes every day, some days, rarely, or not at all?
nih_cig_smoke_freqNicotine Frequency: Do you now smoke cigarettes?
nih_smoking_ynDo you use any tobacco/nicotine products (including cigarettes, cigars, e-cigarettes, etc)?
nih_history_smokingHistory of Smoking
nih_alcohol_ynAlcohol use (Yes or No)
nih_lifetime_use_alcoholIn your entire life, have you had at least 1 drink of any kind of alcohol, not counting small tastes or sips? (Yes or No)
nih_alcohol_frequencyHow often did you have a drink containing alcohol ?
nih_asthmaAsthma
nih_cancer_past_yrCancer diagnosis and/or treatment within the past 12 months
nih_cardiovascular_diseaseCardiovascular disease
nih_chronic_kidney_diseaseChronic kidney disease
nih_diabetesDiabetes
nih_hypertensionHypertension
nih_mental_health_disorderMental health disorder
nih_sickle_cell_diseaseSickle cell disease
nih_pregnancyPregnancy status
nih_immunocompromisedImmunocompromised condition
nih_autoimmAutoimmune disease
nih_copdChronic obstructive pulmonary disease (COPD)
nih_chronic_lungOther chronic lung disease
nih_depressionDepression
nih_alc_sub_abuseAlcohol or substance use disorder
nih_iv_drug_useIntravenous drug use
nih_other_chronic_condOther chronic condition
nih_health_statusWould you say that (your) health in general is excellent, very good, good, fair, or poor?
nih_heightWhat is your height in inches?
nih_weightWhat is your weight in pounds?
age_yrsAge For babies less than 1 year old, do not write the age in months. Write 0 as the age. (Years)
bio_sex_birth_2What was your sex assigned at birth on your birth certificate?
cc_asthma_2Asthma
cc_asud_2Alcohol or substance use disorder
cc_autoimm_2Autoimmune disease
cc_cancer_2Cancer diagnosis and/or treatment within the past 12 months
cc_chronickd_2Chronic kidney disease (CKD)
cc_clung_2Other chronic lung disease
cc_copd_2Chronic obstructive pulmonary disease (COPD)
cc_cvd_2Cardiovascular disease (CVD or heart disease)
cc_depression_2Depression
cc_diabetes_2Diabetes
cc_hypertension_2Hypertension (HTN, high blood pressure)
cc_imm_2Immunocompromised condition
cc_intrav_2Intravenous drug use
cc_otherchroniccond_2Other chronic condition
cc_othermh_2Other mental health disorder
cc_sickle_2Sickle Cell Anemia
current_employment_statusWe would like to know about what you do -- are you working now, looking for work, retired, keeping house, a student, or something else?
hi_coverage_typeWhat is the primary kind of health insurance or health care plan that you have now? (Exclude plans that pay for only one type of Service (such as, nursing home care, accidents, family planning, or dental care) and plans that only provide extra cash when hospitalized. )
lifetime_use_alcoholIn your entire life, have you had at least 1 drink of any kind of alcohol, not counting small tastes or sips?
pregnancy_statusAre you currently pregnant?
race_ethn_hispanicAre you of Hispanic, Latino, or Spanish origin?
self_reported_disabilityDo you have a disability that interferes with your ability to carry out daily activities? Examples of daily activities include walking, climbing stairs, shopping, balancing a checkbook, bathing or dressing.
self_reported_height_centimetersCentimeters
self_reported_height_feetFeet
self_reported_height_inchesInches
self_reported_height_metersMeters
self_reported_weight_kgsHow much do you weigh without clothes or shoes? If you are currently pregnant, how much did you weigh before your pregnancy?
self_reported_weight_lbsHow much do you weigh without clothes or shoes? If you are currently pregnant, how much did you weigh before your pregnancy?
smoker_cur_stat_2Do you now smoke cigarettes?
vaper_cur_statDo you now use electronic cigarettes every day, some days, rarely, or not at all?
zip_codeZip Code
alcohol_date_mdy-
alcohol_daysperweek-
consentdt_mdy-
consent_given-
consent_ident-
consent_recontact-
consent_zip_2-
covid_pandemic_challenges_abod_2-
covid_pandemic_challenges_food_2-
covid_pandemic_challenges_wate_2-
covid_vaccine-
covid_vaccine_course-
cov_pan_chal_hlth_2-
cov_pan_chal_med_2-
cov_pan_chlng_trans_2-
cov_tst_mthd_2-
edu_years_of_school-
employed_ew-
employed_healthcare_2-
family_income-
flu_vaccinehistind_2-
flu_vaccine_season_3-
gender_identity_term_2-
hi_loss_covid-
hlthstat_date_mdy-
household_congregate_3-
household_famgen_3-
household_homeless-
housing_date_mdy-
iden_date_mdy-
isolate_maintain_job-
jobloss_covid19_2-
language_english-
language_home___1-
language_home___10-
language_home___11-
language_home___12-
language_home___13-
language_home___14-
language_home___15-
language_home___16-
language_home___17-
language_home___18-
language_home___19-
language_home___2-
language_home___20-
language_home___21-
language_home___22-
language_home___23-
language_home___24-
language_home___25-
language_home___26-
language_home___27-
language_home___28-
language_home___29-
language_home___3-
language_home___30-
language_home___31-
language_home___32-
language_home___33-
language_home___34-
language_home___35-
language_home___36-
language_home___37-
language_home___38-
language_home___39-
language_home___4-
language_home___40-
language_home___41-
language_home___42-
language_home___43-
language_home___44-
language_home___45-
language_home___46-
language_home___5-
language_home___6-
language_home___7-
language_home___8-
language_home___9-
language_home___90-
language_home___99-
language_pref___1-
language_pref___10-
language_pref___11-
language_pref___12-
language_pref___13-
language_pref___14-
language_pref___15-
language_pref___16-
language_pref___17-
language_pref___18-
language_pref___19-
language_pref___2-
language_pref___20-
language_pref___21-
language_pref___22-
language_pref___23-
language_pref___24-
language_pref___25-
language_pref___26-
language_pref___27-
language_pref___28-
language_pref___29-
language_pref___3-
language_pref___30-
language_pref___31-
language_pref___32-
language_pref___33-
language_pref___34-
language_pref___35-
language_pref___36-
language_pref___37-
language_pref___38-
language_pref___39-
language_pref___4-
language_pref___40-
language_pref___41-
language_pref___42-
language_pref___43-
language_pref___44-
language_pref___45-
language_pref___46-
language_pref___5-
language_pref___6-
language_pref___7-
language_pref___8-
language_pref___9-
language_pref___90-
language_pref___99-
languages-
language_spoken___10-
language_spoken___11-
language_spoken___12-
language_spoken___13-
language_spoken___14-
language_spoken___15-
language_spoken___16-
language_spoken___17-
language_spoken___18-
language_spoken___19-
language_spoken___20-
language_spoken___21-
language_spoken___22-
language_spoken___23-
language_spoken___24-
language_spoken___25-
language_spoken___26-
language_spoken___27-
language_spoken___28-
language_spoken___29-
language_spoken___30-
language_spoken___31-
language_spoken___32-
language_spoken___33-
language_spoken___34-
language_spoken___35-
language_spoken___36-
language_spoken___37-
language_spoken___38-
language_spoken___39-
language_spoken___40-
language_spoken___41-
language_spoken___42-
language_spoken___43-
language_spoken___44-
language_spoken___45-
language_spoken___46-
language_spoken___9-
language_spoken___99-
med_hx_date_mdy-
positivemonth_covidtest_2-
positiveyear_covidtest_3-
preferred_contact_method_2-
quarantine_maintain_job-
race_ethn_asian_detail___10-
race_ethn_asian_detail___11-
race_ethn_asian_detail___12-
race_ethn_asian_detail___13-
race_ethn_asian_detail___14-
race_ethn_asian_detail___15-
race_ethn_asian_detail___16-
race_ethn_asian_detail___17-
race_ethn_asian_detail___18-
race_ethn_asian_detail___19-
race_ethn_asian_detail___20-
race_ethn_asian_detail___21-
race_ethn_asian_detail___22-
race_ethn_asian_detail_3___1-
race_ethn_asian_detail_3___2-
race_ethn_asian_detail_3___3-
race_ethn_asian_detail_3___4-
race_ethn_asian_detail_3___5-
race_ethn_asian_detail___6-
race_ethn_asian_detail___7-
race_ethn_asian_detail___8-
race_ethn_asian_detail___9-
race_ethn_asian_detail___99-
race_ethn_hispanic_detail_2___1-
race_ethn_hispanic_detail_2___2-
race_ethn_hispanic_detail_2___3-
race_ethn_hispanic_detail_2___4-
race_ethn_hispanic_detail_2___5-
race_ethn_hispanic_detail_2___6-
race_ethn_hispanic_detail_2___7-
race_ethn_hispanic_detail_2___99-
race_ethn_islander_detail_2___1-
race_ethn_islander_detail_2___10-
race_ethn_islander_detail_2___11-
race_ethn_islander_detail_2___12-
race_ethn_islander_detail_2___13-
race_ethn_islander_detail_2___14-
race_ethn_islander_detail_2___2-
race_ethn_islander_detail_2___3-
race_ethn_islander_detail_2___4-
race_ethn_islander_detail_2___5-
race_ethn_islander_detail_2___6-
race_ethn_islander_detail_2___7-
race_ethn_islander_detail_2___8-
race_ethn_islander_detail_2___9-
race_ethn_race___1-
race_ethn_race___15-
race_ethn_race___2-
race_ethn_race___3-
race_ethn_race___4-
race_ethn_race___5-
race_ethn_race___99-
recentmonth_covidtest_2-
recentresult_covidtest-
recentyear_covidtest_3-
redcap_event_name-
redcap_repeat_instance-
redcap_repeat_instrument-
self_reported_health_status_assessment-
self_reported_height_coded-
self_reported_weight_units_2-
sex_orient_id-
smoker_number-
sociodem_date_mdy-
test_accesseasy_2-
test_accesswhere_2-
test_date_mdy-
tested_for_covid-
tested_positive_for_covid-
test_intent_2-
test_pbenearound_2-
test_pbeneexposed_2-
test_pbenepos_2-
test_pbenesafe_2-
test_pbenework_2-
test_pbeneworry_2-
test_percvaccuneg_2-
test_percvaccupos_2-
test_priskcontact_2-
test_priskhlthcare_2-
test_priskknow_2-
test_prisklater_2-
test_prisknohelp_2-
test_prisknosymp_2-
test_priskouch_2-
test_resneg_2___1-
test_resneg_2___2-
test_resneg_2___3-
test_resneg_2___4-
test_resneg___99-
test_respos_2___1-
test_respos_2___2-
test_respos_2___3-
test_respos___99-
trust_coll_3-
trust_cortf_3-
trust_doc_3-
trust_fam_3-
trust_flead_3-
trust_news_3-
trust_social_3-
trust_usgov_3-
vacc_date_mdy-
vaccine_concerns_3___1-
vaccine_concerns_3___10-
vaccine_concerns_3___2-
vaccine_concerns_3___3-
vaccine_concerns_3___4-
vaccine_concerns_3___5-
vaccine_concerns_3___6-
vaccine_concerns_3___7-
vaccine_concerns_3___8-
vaccine_concerns_3___9-
vaccine_concerns___96-
vaccine_concerns___99-
vaccine_reasons___10-
vaccine_reasons___11-
vaccine_reasons_3___1-
vaccine_reasons_3___2-
vaccine_reasons_3___3-
vaccine_reasons_3___4-
vaccine_reasons_3___5-
vaccine_reasons_3___6-
vaccine_reasons_3___7-
vaccine_reasons_3___8-
vaccine_reasons_3___9-
vaccine_reasons___96-
vaccine_reasons___99-
work_closecont_2-
work_ppe_2-
work_ppe_date_mdy-
work_wash_2-
Study Documents
Study Documents Table
Document
Document Name
File Size
Download
READMEprojectS8_README.html274.66 KB
Study Documentationphs002568_Project 43_Protocol.pdf756.26 KB
Study Documentationphs002568_Project S8_Project Aims.pdf440.97 KB
Study DocumentationprojectS8_DDE_dictionary_origcopy.pdf1.71 MB
Study Documentationproject43_DDE_dictionary_origcopy.csv38.20 KB
READMEproject43_README.html274.65 KB
Data Files
Total Files: 16
Data Files: 6
Metadata Files: 6
Dictionary Files: 4
Study Datasets Table
File Name
File Type
File Format(s)
# of Records
# of Variables
Metadata
Dictionary
projectS8_DATA_transformcopy.csvTabular Data - Harmonizedcsv279
projectS8_DATA_origcopy.csvTabular Data - Non-harmonizedcsv279
projectS8_DDE_DATA_origcopy.csvTabular Data - Non-harmonizedcsv279

project43_DATA_transformcopy.csvTabular Data - Harmonizedcsv685
project43_DATA_origcopy.csvTabular Data - Non-harmonizedcsv685
project43_DDE_DATA_origcopy.csvTabular Data - Non-harmonizedcsv685