dbGaP Study Accession: phs002874
NIH Institute/Center: NIMHD
RADx Data Program: RADx-UP
DOI: 10.60773/r2zx-gw24
Release Date: 08/30/2023
Study Description: Hispanics living in the United States have been negatively affected by the COVID-19 pandemic in a disproportionate manner, including significantly higher infection and hospitalization rates compared with non-Hispanic whites. The El Paso, TX metropolitan area has a substantial Hispanic population that has been profoundly affected by the current SARS-CoV-2 pandemic, especially the vulnerable residents of rural El Paso County. Many of these residents suffer from marked cumulative disadvantages with limited healthcare, poor access to public transportation, work as essential workers in low-paying frontline jobs, and demonstrate a persistent hesitancy to interact with unfamiliar medical systems and processes, resulting in "SARS-CoV-2 testing deserts". There is a critical need to increase the number of individuals being tested for SARS-CoV-2 in El Paso County, however, success in this space requires an integrated and personalized approach whereby residents are engaged with and informed by trusted co-ethnics and local organizations. The aims strategically integrated University of Texas at El Paso (UTEP), non-profit, business, and public partners, coupled with culturally-centric familial and Community Health Worker (CHWs) networks, as catalysts to: 1) reduce testing deficiencies by providing SARS-CoV-2 testing information, navigation strategies to testing sites, and implementing local pop-up testing sites, and 2) provide foundational data for understanding testing barriers and developing platforms for assessing future COVID-19 vaccine uptake willingness for El Paso residents. The UTEP Border Biomedical Research Center (BBRC), and associated Coronavirus Testing Program that provides CLIA-certified testing, was central to completion of the integrated approaches, and the established capability of the investigative team to interact with community partners and recruit participants was a prominent strength of the plan. The studies tested the novel hypothesis that improving the reach, acceptance, uptake and sustainability of SARS-CoV-2 testing for the most marginalized populations of El Paso County is dependent on implementing strategies that target the cultural, social and behavioral factors characteristic of this population. The multifaceted approach enhanced the testing capacity in the El Paso region, reduced testing hesitancy, increased coronavirus testing numbers for vulnerable populations within specific testing deserts, and exerted a sustained influence on the health status of the region by integrating the extensive collaborative networks that are essential for addressing the persistent negative social determinants of health.
Updated Date: 04/17/2024
Principal Investigator: Kirken, Robert A
Has Data Files: Yes
Study Domain: COVID Testing Deserts; Mobile Unit Testing; Social Determinants of Health; Testing Rate or Uptake; Vaccination Rate or Uptake
Data Collection Method: Survey
Keywords: CHWs; CLIA-certified Testing; Community Health Workers; Familial Influences; Pop-up Testing; Testing Navigation
Study Design: Cross-Sectional
Multi-Center Study: No
Data Types: Behavioral; Family History; Questionnaire or Survey; Social
Study Start Date: 11/01/2020
Study End Date: 10/31/2022
Species: Human
Estimated Cohort Size: 2930
Study Population Focus: Adults; Hispanics or Latinos; Older Adults or Elderly; Racial or Ethnic Minorities; Rural Communities; Underserved or Vulnerable Populations
Publication URL: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10049437/; https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10057517/
Acknowledgement Statement: This study was supported through funding, 3U54MD007592-27S1, for the National Institute on Minority Health and Health Disparities (NIMHD) as part of the RADx-UP program. Approved users should acknowledge the provision of data access by dbGaP for accession phs002874.v1.p1, and the NIH RADx Data Hub. Approved users should also acknowledge the specific version(s) of the dataset(s) obtained from the NIH RADx Data Hub.
Funding Opportunity Announcement (FOA) Number: PA-20-135
NIH Grant or Contract Number(s): 3U54MD007592-27S1
Consent/Data Use Limitations: General Research Use
Variable Name | Label |
---|---|
nih_record_id | User ID |
nih_race | What is your race? |
nih_ethnicity | Are you of Hispanic or Latino origin? May include Spanish origin. |
nih_age | What is your age? |
nih_sex | What is your biological sex assigned at birth? |
nih_education | What is the highest level of education you have achieved outside or in the United States? |
nih_employment | Please specify your employment status. |
nih_insurance | What kind of health insurance do you have? |
nih_disability | Do you have a disability, including serious physical or mental conditions, that interfere with your ability to carry out daily activities? |
nih_deaf | Are you deaf or do you have serious difficulty hearing? |
nih_blind | Are you blind or do you have serious difficulty seeing, even when wearing glasses? |
nih_memory | Because of a physical, mental, or emotional condition, do you have serious difficulty concentrating, remembering, or making decisions? |
nih_walk_climb | Do you have serious difficulty walking or climbing stairs? |
nih_dress_bathe | Do you have difficulty dressing or bathing? |
nih_errand | Because of a physical, mental, or emotional condition, do you have difficulty doing errands alone such as visiting a doctor's office or shopping? |
nih_vape_freq | Vaping Frequency: Do you now use electronic cigarettes every day, some days, rarely, or not at all? |
nih_cig_smoke_freq | Nicotine Frequency: Do you now smoke cigarettes? |
nih_smoking_yn | Do you use any tobacco/nicotine products (including cigarettes, cigars, e-cigarettes, etc)? |
nih_history_smoking | History of Smoking |
nih_alcohol_yn | Alcohol use (Yes or No) |
nih_lifetime_use_alcohol | In your entire life, have you had at least 1 drink of any kind of alcohol, not counting small tastes or sips? (Yes or No) |
nih_alcohol_frequency | How often did you have a drink containing alcohol ? |
nih_asthma | Asthma |
nih_cancer_past_yr | Cancer diagnosis and/or treatment within the past 12 months |
nih_cardiovascular_disease | Cardiovascular disease |
nih_chronic_kidney_disease | Chronic kidney disease |
nih_diabetes | Diabetes |
nih_hypertension | Hypertension |
nih_mental_health_disorder | Mental health disorder |
nih_sickle_cell_disease | Sickle cell disease |
nih_pregnancy | Pregnancy status |
nih_immunocompromised | Immunocompromised condition |
nih_autoimm | Autoimmune disease |
nih_copd | Chronic obstructive pulmonary disease (COPD) |
nih_chronic_lung | Other chronic lung disease |
nih_depression | Depression |
nih_alc_sub_abuse | Alcohol or substance use disorder |
nih_iv_drug_use | Intravenous drug use |
nih_other_chronic_cond | Other chronic condition |
nih_health_status | Would you say that (your) health in general is excellent, very good, good, fair, or poor? |
nih_height | What is your height in inches? |
nih_weight | What is your weight in pounds? |
age_yrs | Age For babies less than 1 year old, do not write the age in months. Write 0 as the age. (Years) |
bio_sex_birth_2 | What was your sex assigned at birth on your birth certificate? |
cc_asthma_2 | Asthma |
cc_asud_2 | Alcohol or substance use disorder |
cc_autoimm_2 | Autoimmune disease |
cc_cancer_2 | Cancer diagnosis and/or treatment within the past 12 months |
cc_chronickd_2 | Chronic kidney disease (CKD) |
cc_clung_2 | Other chronic lung disease |
cc_copd_2 | Chronic obstructive pulmonary disease (COPD) |
cc_cvd_2 | Cardiovascular disease (CVD or heart disease) |
cc_depression_2 | Depression |
cc_diabetes_2 | Diabetes |
cc_hypertension_2 | Hypertension (HTN, high blood pressure) |
cc_imm_2 | Immunocompromised condition |
cc_intrav_2 | Intravenous drug use |
cc_otherchroniccond_2 | Other chronic condition |
cc_othermh_2 | Other mental health disorder |
cc_sickle_2 | Sickle Cell Anemia |
current_employment_status | We would like to know about what you do -- are you working now, looking for work, retired, keeping house, a student, or something else? |
disability_blind_2 | Are you blind, or do you have serious difficulty seeing, even when wearing glasses? |
disability_deaf_2 | Are you deaf, or do you have serious difficulty hearing? |
disability_decisions_2 | Because of a physical, mental, or emotional condition, do you have serious difficulty concentrating, remembering, or making decisions? (5 years of age or older) |
disability_dress_2 | Do you have difficulty dressing or bathing? (5 years of age or older) |
disability_errands_2 | Because of a physical, mental, or emotional condition, do you have difficulty doing errands alone such as visiting a doctor's office or shopping? (15 years of age or older) |
disability_walking_2 | Do you have serious difficulty walking or climbing stairs? (5 years of age or older) |
hi_coverage_type | What is the primary kind of health insurance or health care plan that you have now? (Exclude plans that pay for only one type of Service (such as, nursing home care, accidents, family planning, or dental care) and plans that only provide extra cash when hospitalized. ) |
lifetime_use_alcohol | In your entire life, have you had at least 1 drink of any kind of alcohol, not counting small tastes or sips? |
pregnancy_status | Are you currently pregnant? |
race_ethn_hispanic | Are you of Hispanic, Latino, or Spanish origin? |
self_reported_disability | Do you have a disability that interferes with your ability to carry out daily activities? Examples of daily activities include walking, climbing stairs, shopping, balancing a checkbook, bathing or dressing. |
self_reported_height_centimeters | Centimeters |
self_reported_height_feet | Feet |
self_reported_height_inches | Inches |
self_reported_height_meters | Meters |
self_reported_weight_kgs | How much do you weigh without clothes or shoes? If you are currently pregnant, how much did you weigh before your pregnancy? |
self_reported_weight_lbs | How much do you weigh without clothes or shoes? If you are currently pregnant, how much did you weigh before your pregnancy? |
smoker_cur_stat_2 | Do you now smoke cigarettes? |
vaper_cur_stat | Do you now use electronic cigarettes every day, some days, rarely, or not at all? |
alcohol_daysperweek | - |
alcohol_drinksperday | - |
cocaine_use_2 | - |
covid_barrier___1 | - |
covid_barrier___2 | - |
covid_barrier___3 | - |
covid_barrier___4 | - |
covid_barrier___5 | - |
covid_barrier___6 | - |
covid_barrier___7 | - |
covid_barrier___8 | - |
covid_barrier___9 | - |
covid_barrier___98 | - |
covid_barrier___99 | - |
covid_had | - |
covid_iso_chal___1 | - |
covid_iso_chal___2 | - |
covid_iso_chal___3 | - |
covid_iso_chal___4 | - |
covid_iso_chal___5 | - |
covid_iso_chal___6 | - |
covid_iso_chal___7 | - |
covid_iso_chal___8 | - |
covid_iso_chal___9 | - |
covid_iso_chal___98 | - |
covid_iso_chal___99 | - |
covid_pandemic_challenges_abod_2 | - |
covid_pandemic_challenges_food_2 | - |
covid_pandemic_challenges_wate_2 | - |
covid_pto | - |
covid_risk | - |
covid_test_approval | - |
covid_test_collect_datetime | - |
covid_test_collection_setting | - |
covid_test_date_mdy | - |
covid_tested_30 | - |
covid_test_performed_location | - |
covid_test_result | - |
covid_test_specimen_collector | - |
covid_test_specimen_type | - |
covid_test_study_setting | - |
covid_test_type | - |
covid_tst_reas | - |
covid_vaccine | - |
cov_pan_chal_hlth_2 | - |
cov_pan_chal_med_2 | - |
cov_pan_chlng_trans_2 | - |
cov_tst_mthd_2 | - |
ecstasy_use | - |
edu_years_of_school | - |
employed_ew | - |
employed_healthcare_2 | - |
family_income | - |
fi_afford_balanced_meals | - |
fi_change_diet | - |
fi_change_diet_frequency | - |
fi_eat_less | - |
fi_food_money_frequency | - |
fi_high_quality_2 | - |
fi_hungry | - |
flu_vaccinehistind_2 | - |
flu_vaccine_season_3 | - |
gender_identity_term_2 | - |
hallu_use_2 | - |
heroin_use_2 | - |
hi_loss_covid | - |
household_famgen_3 | - |
household_homeless | - |
housing_concerns | - |
idrug_use_2 | - |
isolate_maintain_job | - |
jobloss_covid19_2 | - |
language_english | - |
language_home___1 | - |
language_home___2 | - |
language_home___3 | - |
language_home___4 | - |
language_home___5 | - |
language_home___6 | - |
language_home___7 | - |
language_home___8 | - |
language_home___9 | - |
language_home___90 | - |
language_home___99 | - |
mari_use_2 | - |
mari_use_smk_2 | - |
mari_use_vap_2 | - |
meth_use_2 | - |
missed_procedure_2 | - |
pdrg_use_2 | - |
positivemonth_covidtest_2 | - |
positiveyear_covidtest_3 | - |
quarantine_maintain_job | - |
race_ethn_asian_detail_3___1 | - |
race_ethn_asian_detail_3___2 | - |
race_ethn_asian_detail_3___3 | - |
race_ethn_asian_detail_3___4 | - |
race_ethn_asian_detail_3___5 | - |
race_ethn_asian_detail_3___99 | - |
race_ethn_hispanic_detail_2___1 | - |
race_ethn_hispanic_detail_2___2 | - |
race_ethn_hispanic_detail_2___3 | - |
race_ethn_hispanic_detail_2___4 | - |
race_ethn_hispanic_detail_2___5 | - |
race_ethn_hispanic_detail_2___6 | - |
race_ethn_hispanic_detail_2___7 | - |
race_ethn_hispanic_detail_2___99 | - |
race_ethn_islander_detail_2___1 | - |
race_ethn_islander_detail_2___10 | - |
race_ethn_islander_detail_2___11 | - |
race_ethn_islander_detail_2___12 | - |
race_ethn_islander_detail_2___13 | - |
race_ethn_islander_detail_2___14 | - |
race_ethn_islander_detail_2___2 | - |
race_ethn_islander_detail_2___3 | - |
race_ethn_islander_detail_2___4 | - |
race_ethn_islander_detail_2___5 | - |
race_ethn_islander_detail_2___6 | - |
race_ethn_islander_detail_2___7 | - |
race_ethn_islander_detail_2___8 | - |
race_ethn_islander_detail_2___9 | - |
race_ethn_islander_detail_2___99 | - |
race_ethn_race___1 | - |
race_ethn_race___15 | - |
race_ethn_race___2 | - |
race_ethn_race___3 | - |
race_ethn_race___4 | - |
race_ethn_race___5 | - |
race_ethn_race___99 | - |
recentmonth_covidtest_2 | - |
recentresult_covidtest | - |
recentyear_covidtest_3 | - |
redcap_event_name | - |
redcap_repeat_instance | - |
redcap_repeat_instrument | - |
self_reported_health_status_assessment | - |
self_reported_height_coded | - |
self_reported_weight_units_2 | - |
sex_orient_desc_2 | - |
sex_orient_id | - |
smoker_number | - |
smoke_years | - |
stable_housing | - |
take_presc_meds | - |
test_accesseasy_2 | - |
test_accesswhere_2 | - |
tested_for_covid | - |
tested_positive_for_covid | - |
testing_comm_2___1 | - |
testing_comm_2___2 | - |
testing_comm_2___3 | - |
testing_comm_2___4 | - |
testing_died | - |
testing_hosp | - |
testing_sick | - |
testing_wait_2 | - |
test_intent_2 | - |
test_pbenearound_2 | - |
test_pbeneexposed_2 | - |
test_pbenepos_2 | - |
test_pbenesafe_2 | - |
test_pbenework_2 | - |
test_pbeneworry_2 | - |
test_percvaccuneg_2 | - |
test_percvaccupos_2 | - |
test_priskcontact_2 | - |
test_priskhlthcare_2 | - |
test_priskknow_2 | - |
test_prisklater_2 | - |
test_prisknohelp_2 | - |
test_prisknosymp_2 | - |
test_priskouch_2 | - |
test_resneg_2___1 | - |
test_resneg_2___2 | - |
test_resneg_2___3 | - |
test_resneg_2___4 | - |
test_respos_2___1 | - |
test_respos_2___2 | - |
test_respos_2___3 | - |
trust_coll_2 | - |
trust_cortf_2 | - |
trust_doc_2 | - |
trust_fam_2 | - |
trust_flead_2 | - |
trust_news_2 | - |
trust_social_2 | - |
trust_usgov_2 | - |
utep_attention | - |
vaccine_booster | - |
vaccine_concerns_3___1 | - |
vaccine_concerns_3___10 | - |
vaccine_concerns_3___2 | - |
vaccine_concerns_3___3 | - |
vaccine_concerns_3___4 | - |
vaccine_concerns_3___5 | - |
vaccine_concerns_3___6 | - |
vaccine_concerns_3___7 | - |
vaccine_concerns_3___8 | - |
vaccine_concerns_3___9 | - |
vaccine_concerns_3___96 | - |
vaccine_conven_2 | - |
vaccine_dose | - |
vaccine_edu_post | - |
vaccine_edu_pre | - |
vaccine_effective_2 | - |
vaccine_free_2 | - |
vaccine_literacy | - |
vaccine_manufac_2 | - |
vaccine_no_pain_2 | - |
vaccine_options | - |
vaccine_prev_expos | - |
vaccine_reasons_3___1 | - |
vaccine_reasons_3___10 | - |
vaccine_reasons_3___11 | - |
vaccine_reasons_3___2 | - |
vaccine_reasons_3___3 | - |
vaccine_reasons_3___4 | - |
vaccine_reasons_3___5 | - |
vaccine_reasons_3___6 | - |
vaccine_reasons_3___7 | - |
vaccine_reasons_3___8 | - |
vaccine_reasons_3___9 | - |
vaccine_reasons_3___96 | - |
vaccine_requirement | - |
vaccine_safe_2 | - |
vaper_years | - |
work_closecont_2 | - |
work_ppe_2 | - |
work_wash_2 | - |