dbGaP Study Accession: phs002608
NIH Institute/Center: NIDA
RADx Data Program: RADx-UP
Release Date: 12/07/2023
DOI: 10.60773/sh92-7q42
Study Description: Racial minorities have disproportionate risk for SARS-CoV-2 diagnoses and adverse outcomes including death. Burden of disease in Black populations is likely underestimated due to sub-optimal access to, and usage of, SARS-CoV-2 testing. Serosurveys, which use probability-based methods to select persons for SARS-CoV-2 testing and an accompanying survey, have potential to improve understanding of population-level burden of disease and risk factors for infection. However, early results from U.S.-based serosurveys indicate sub-optimal participation rates among Black populations, which results in their under-representation in burden of disease estimates and a limited understanding of risk factors for infection. The current project aimed to identify barriers and motivations for participation in population-based SARS-CoV-2 serosurveys among diverse Black sub-populations (e.g., by gender, age, and education level). Understanding factors that influence Black people's decision-making about serosurvey participation and how these factors differ by socio-demographic characteristics enabled tailored recommendations for increasing Black populations' participation in serosurveys and representation in burden of disease estimates. The interdisciplinary team of epidemiologists, behavioral scientists, and community health advocates/practitioners used qualitative and quantitative methods in the context of serosurveys to understand how influences on decision-making are related to actual decisions about participation in SARS-CoV-2 antibody testing. The qualitative interview guide was informed by the family of value expectancy theories and was developed in collaboration with a community advisory board (CAB), who also helped to identify community constituents for participation in qualitative interviews. Key themes from the qualitative interviews, and language used by respondents, informed a quantitative survey instrument, which assessed relative strengths of influences on serosurvey participation and how they differ socio-demographically across Black sub-populations. The Specific Aims of this study were: (1) Convene a community advisory board (CAB) comprising leaders from organizations serving Black communities in Atlanta (e.g., professional, faith-based, health and social services); (2) In the context of a SARS-CoV-2 serosurvey, conduct 50 semi-structured interviews about barriers and motivations for serosurvey and vaccine participation with Black persons from 3 diverse neighborhoods, representing a range of socio-demographic characteristics; (3) Determine the distribution of barriers and motivations for serosurvey participation across socio-demographic subgroups of 2,000 Black persons using a quantitative survey. Recommendations for increasing participation of black communities in SARS-CoV-2 serosurveys were provided, which is critical as SARS-CoV-2 serosurveys were likely to be used for on-going disease surveillance in the U.S. and to inform both resource allocation and design and monitoring of prevention and control strategies.
Updated Date: 04/17/2024
Principal Investigator: Bradley, Heather
Has Data Files: Yes
Study Domain: Pandemic Perceptions or Decision-Making; Serological or Antibody Testing; Social Determinants of Health; Testing Rate or Uptake
Data Collection Method: Interview or Focus Group; Survey
Keywords: Serosurveys; Testing Disparities
Study Design: Mixed Methods
Multi-Center Study: No
Data Types: Behavioral; Clinical; Questionnaire or Survey
Study Start Date: 12/01/2020
Study End Date: 11/30/2022
Species: Human
Estimated Cohort Size: 2050
Study Population Focus: Adults; African Americans; Children; Older Adults or Elderly
Acknowledgement Statement: This study was supported through funding, 3R01DA051302-01S1, for the National Institute on Drug Abuse (NIDA) as part of the RADx-UP program. Approved users should acknowledge the provision of data access by dbGaP for accession phs002608.v1.p1, and the NIH RADx Data Hub. Approved users should also acknowledge the specific version(s) of the dataset(s) obtained from the NIH RADx Data Hub.
Funding Opportunity Announcement (FOA) Number: PA-20-135
NIH Grant or Contract Number(s): 3R01DA051302-01S1
Consent/Data Use Limitations: General Research Use
Variable Name | Label |
---|---|
nih_record_id | User ID |
nih_race | What is your race? |
nih_ethnicity | Are you of Hispanic or Latino origin? May include Spanish origin. |
nih_age | What is your age? |
nih_education | What is the highest level of education you have achieved outside or in the United States? |
nih_zip | What is your zip code? |
nih_employment | Please specify your employment status. |
nih_insurance | What kind of health insurance do you have? |
nih_disability | Do you have a disability, including serious physical or mental conditions, that interfere with your ability to carry out daily activities? |
nih_cig_smoke_freq | Nicotine Frequency: Do you now smoke cigarettes? |
nih_smoking_yn | Do you use any tobacco/nicotine products (including cigarettes, cigars, e-cigarettes, etc)? |
nih_history_smoking | History of Smoking |
nih_lifetime_use_alcohol | In your entire life, have you had at least 1 drink of any kind of alcohol, not counting small tastes or sips? (Yes or No) |
nih_asthma | Asthma |
nih_cancer_past_yr | Cancer diagnosis and/or treatment within the past 12 months |
nih_cardiovascular_disease | Cardiovascular disease |
nih_chronic_kidney_disease | Chronic kidney disease |
nih_diabetes | Diabetes |
nih_hypertension | Hypertension |
nih_mental_health_disorder | Mental health disorder |
nih_sickle_cell_disease | Sickle cell disease |
nih_pregnancy | Pregnancy status |
nih_immunocompromised | Immunocompromised condition |
nih_autoimm | Autoimmune disease |
nih_copd | Chronic obstructive pulmonary disease (COPD) |
nih_chronic_lung | Other chronic lung disease |
nih_depression | Depression |
nih_alc_sub_abuse | Alcohol or substance use disorder |
nih_iv_drug_use | Intravenous drug use |
nih_other_chronic_cond | Other chronic condition |
nih_health_status | Would you say that (your) health in general is excellent, very good, good, fair, or poor? |
nih_height | What is your height in inches? |
nih_weight | What is your weight in pounds? |
age_yrs | Age For babies less than 1 year old, do not write the age in months. Write 0 as the age. (Years) |
cc_asthma_2 | Asthma |
cc_asud_2 | Alcohol or substance use disorder |
cc_autoimm_2 | Autoimmune disease |
cc_cancer_2 | Cancer diagnosis and/or treatment within the past 12 months |
cc_chronickd_2 | Chronic kidney disease (CKD) |
cc_clung_2 | Other chronic lung disease |
cc_copd_2 | Chronic obstructive pulmonary disease (COPD) |
cc_cvd_2 | Cardiovascular disease (CVD or heart disease) |
cc_depression_2 | Depression |
cc_diabetes_2 | Diabetes |
cc_hypertension_2 | Hypertension (HTN, high blood pressure) |
cc_imm_2 | Immunocompromised condition |
cc_intrav_2 | Intravenous drug use |
cc_otherchroniccond_2 | Other chronic condition |
cc_othermh_2 | Other mental health disorder |
cc_sickle_2 | Sickle Cell Anemia |
current_employment_status | We would like to know about what you do -- are you working now, looking for work, retired, keeping house, a student, or something else? |
hi_coverage_type | What is the primary kind of health insurance or health care plan that you have now? (Exclude plans that pay for only one type of Service (such as, nursing home care, accidents, family planning, or dental care) and plans that only provide extra cash when hospitalized. ) |
lifetime_use_alcohol | In your entire life, have you had at least 1 drink of any kind of alcohol, not counting small tastes or sips? |
pregnancy_status | Are you currently pregnant? |
race_ethn_hispanic | Are you of Hispanic, Latino, or Spanish origin? |
self_reported_disability | Do you have a disability that interferes with your ability to carry out daily activities? Examples of daily activities include walking, climbing stairs, shopping, balancing a checkbook, bathing or dressing. |
self_reported_height_centimeters | Centimeters |
self_reported_height_feet | Feet |
self_reported_height_inches | Inches |
self_reported_height_meters | Meters |
self_reported_weight_kgs | How much do you weigh without clothes or shoes? If you are currently pregnant, how much did you weigh before your pregnancy? |
self_reported_weight_lbs | How much do you weigh without clothes or shoes? If you are currently pregnant, how much did you weigh before your pregnancy? |
smoker_cur_stat_2 | Do you now smoke cigarettes? |
zip_code | Zip Code |
alcohol_date_mdy | - |
consentdt_mdy | - |
consent_given | - |
consent_ident | - |
consent_zip_2 | - |
covid_barrier___1 | - |
covid_barrier___2 | - |
covid_barrier___3 | - |
covid_barrier___4 | - |
covid_barrier___5 | - |
covid_barrier___6 | - |
covid_barrier___7 | - |
covid_barrier___8 | - |
covid_barrier___9 | - |
covid_barrier___98 | - |
covid_barrier___99 | - |
covid_had | - |
covid_iso_chal___1 | - |
covid_iso_chal___2 | - |
covid_iso_chal___3 | - |
covid_iso_chal___4 | - |
covid_iso_chal___5 | - |
covid_iso_chal___6 | - |
covid_iso_chal___7 | - |
covid_iso_chal___8 | - |
covid_iso_chal___99 | - |
covid_pandemic_challenges_abod_2 | - |
covid_pandemic_challenges_food_2 | - |
covid_pandemic_challenges_wate_2 | - |
covid_pto | - |
covid_risk | - |
covid_tested_30 | - |
covid_tst_reas | - |
covid_vaccine | - |
cov_pan_chal_hlth_2 | - |
cov_pan_chal_med_2 | - |
cov_pan_chlng_trans_2 | - |
cov_tst_mthd_2 | - |
edu_years_of_school | - |
employed_ew | - |
employed_healthcare_2 | - |
family_income | - |
fi_afford_balanced_meals | - |
fi_change_diet | - |
fi_change_diet_frequency | - |
fi_eat_less | - |
fi_food_money_frequency | - |
fi_high_quality_2 | - |
fi_hungry | - |
flu_vaccinehistind_2 | - |
flu_vaccine_season_3 | - |
gender_identity_term_2 | - |
hght_wght_optn | - |
hi_loss_covid | - |
hlthstat_date_mdy | - |
household_congregate_3 | - |
household_famgen_3 | - |
household_homeless | - |
housing_concerns | - |
housing_date_mdy | - |
index | - |
isolate_maintain_job | - |
jobloss_covid19_2 | - |
language_home___1 | - |
language_home___10 | - |
language_home___11 | - |
language_home___12 | - |
language_home___13 | - |
language_home___14 | - |
language_home___15 | - |
language_home___16 | - |
language_home___17 | - |
language_home___18 | - |
language_home___19 | - |
language_home___2 | - |
language_home___20 | - |
language_home___21 | - |
language_home___22 | - |
language_home___23 | - |
language_home___24 | - |
language_home___25 | - |
language_home___26 | - |
language_home___27 | - |
language_home___28 | - |
language_home___29 | - |
language_home___3 | - |
language_home___30 | - |
language_home___31 | - |
language_home___32 | - |
language_home___33 | - |
language_home___34 | - |
language_home___35 | - |
language_home___36 | - |
language_home___37 | - |
language_home___38 | - |
language_home___39 | - |
language_home___4 | - |
language_home___40 | - |
language_home___41 | - |
language_home___42 | - |
language_home___43 | - |
language_home___44 | - |
language_home___45 | - |
language_home___46 | - |
language_home___5 | - |
language_home___6 | - |
language_home___7 | - |
language_home___8 | - |
language_home___9 | - |
language_home___90 | - |
language_home___99 | - |
med_hx_date_mdy | - |
missed_procedure_2 | - |
positivemonth_covidtest_2 | - |
positiveyear_covidtest_3 | - |
quarantine_maintain_job | - |
race_ethn_black | - |
race_ethn_black_detail_1 | - |
race_ethn_black_detail_10 | - |
race_ethn_black_detail_2 | - |
race_ethn_black_detail_3 | - |
race_ethn_black_detail_4 | - |
race_ethn_black_detail_5 | - |
race_ethn_black_detail_6 | - |
race_ethn_black_detail_7 | - |
race_ethn_black_detail_8 | - |
race_ethn_black_detail_9 | - |
race_ethn_black_detail_99 | - |
race_ethn_black_detail_other | - |
race_ethn_hispanic_detail_2___1 | - |
race_ethn_hispanic_detail_2___2 | - |
race_ethn_hispanic_detail_2___3 | - |
race_ethn_hispanic_detail_2___4 | - |
race_ethn_hispanic_detail_2___5 | - |
race_ethn_hispanic_detail_2___6 | - |
race_ethn_hispanic_detail_2___7 | - |
race_ethn_hispanic_detail_2___99 | - |
race_ethn_race___1 | - |
race_ethn_race___15 | - |
race_ethn_race___2 | - |
race_ethn_race___3 | - |
race_ethn_race___4 | - |
race_ethn_race___5 | - |
race_ethn_race___99 | - |
recentmonth_covidtest_2 | - |
recentresult_covidtest | - |
recentyear_covidtest_3 | - |
redcap_event_name | - |
redcap_repeat_instance | - |
redcap_repeat_instrument | - |
self_reported_health_status_assessment | - |
self_reported_height_coded | - |
self_reported_weight_units_2 | - |
sex_orient_desc_2 | - |
sex_orient_id | - |
sociodem_date_mdy | - |
stable_housing | - |
test_accesseasy_2 | - |
test_accesswhere_2 | - |
test_date_mdy | - |
tested_for_covid | - |
tested_positive_for_covid | - |
testing_comm_2___1 | - |
testing_comm_2___2 | - |
testing_comm_2___3 | - |
testing_comm_2___4 | - |
testing_comm_2___99 | - |
testing_died | - |
testing_hosp | - |
testing_sick | - |
testing_wait_2 | - |
test_intent_2 | - |
test_pbenearound_2 | - |
test_pbeneexposed_2 | - |
test_pbenepos_2 | - |
test_pbenesafe_2 | - |
test_pbenework_2 | - |
test_pbeneworry_2 | - |
test_percvaccuneg_2 | - |
test_percvaccupos_2 | - |
test_priskcontact_2 | - |
test_priskhlthcare_2 | - |
test_priskknow_2 | - |
test_prisklater_2 | - |
test_prisknohelp_2 | - |
test_prisknosymp_2 | - |
test_priskouch_2 | - |
test_resneg_2___1 | - |
test_resneg_2___2 | - |
test_resneg_2___3 | - |
test_resneg_2___4 | - |
test_resneg_2___99 | - |
test_respos_2___1 | - |
test_respos_2___2 | - |
test_respos_2___3 | - |
test_respos_2___99 | - |
trust_coll_2 | - |
trust_cortf_2 | - |
trust_doc_2 | - |
trust_fam_2 | - |
trust_flead_2 | - |
trust_news_2 | - |
trust_social_2 | - |
trust_usgov_2 | - |
vacc_date_mdy | - |
vaccine_avail | - |
vaccine_booster | - |
vaccine_concerns_3___1 | - |
vaccine_concerns_3___10 | - |
vaccine_concerns_3___11 | - |
vaccine_concerns_3___2 | - |
vaccine_concerns_3___3 | - |
vaccine_concerns_3___4 | - |
vaccine_concerns_3___5 | - |
vaccine_concerns_3___6 | - |
vaccine_concerns_3___7 | - |
vaccine_concerns_3___8 | - |
vaccine_concerns_3___9 | - |
vaccine_concerns_3___96 | - |
vaccine_concerns_3___99 | - |
vaccine_conven_2 | - |
vaccine_dose | - |
vaccine_edu_post | - |
vaccine_edu_pre | - |
vaccine_effective_2 | - |
vaccine_free_2 | - |
vaccine_last_dte | - |
vaccine_literacy | - |
vaccine_manufac_2 | - |
vaccine_no_pain_2 | - |
vaccine_options | - |
vaccine_prev_expos | - |
vaccine_reasons_3___1 | - |
vaccine_reasons_3___10 | - |
vaccine_reasons_3___11 | - |
vaccine_reasons_3___2 | - |
vaccine_reasons_3___3 | - |
vaccine_reasons_3___4 | - |
vaccine_reasons_3___5 | - |
vaccine_reasons_3___6 | - |
vaccine_reasons_3___7 | - |
vaccine_reasons_3___8 | - |
vaccine_reasons_3___9 | - |
vaccine_reasons_3___96 | - |
vaccine_reasons_3___99 | - |
vaccine_rec1_dte | - |
vaccine_requirement | - |
vaccine_safe_2 | - |
work_closecont_2 | - |
work_ppe_2 | - |
work_ppe_date_mdy | - |
work_wash_2 | - |