dbGaP Study Accession: phs003033
NIH Institute/Center: NIGMS
RADx Data Program: RADx-UP
Release Date: 12/07/2023
DOI: 10.60773/b47b-ek03
Study Description: The focus of this project was to triangulate data from semi-structured surveys, serology testing and census tract-linked public health and economic data to better understand social and behavioral factors related to COVID-19 testing and vaccine uptake in minority communities, and to develop communication strategies to increase acceptance of testing and vaccination. Social and behavioral factors were identified through a semi-structured survey, based on the Johns Hopkins University COVID-19 Community Response Survey available from the NIH Public Health Emergency and Disaster Research Response (DR2) platform, and incorporating the common data elements from the RADx CDCC. The survey collected detailed information on participants' medical history and current health, family structure and living conditions, employment and socioeconomic status, social distancing knowledge and practices, access to health care, presence of symptoms related to COVID-19 in themselves and among their contacts, their history of virus testing and attitudes toward testing, their vaccination history, and their interest in receiving a vaccine. This study was working with community partners to recruit participants from communities which score poorly on Delaware's community health index.
Updated Date: 04/17/2024
Principal Investigator: Harrington, Melissa A
Has Data Files: Yes
Study Domain: Community Outreach Programs; Pandemic Perceptions or Decision-Making; Serological or Antibody Testing; Seroprevalence; Social Determinants of Health; Testing Rate or Uptake; Vaccination Rate or Uptake; Virological Testing
Data Collection Method: Survey
Keywords: Community Context; Demographics; Exploratory Research; Health Factors and Outcomes; Minority Communities; Mitigating Behaviors; Socioeconomic Status; Testing Decision Influences; Trust
Study Design: Longitudinal Cohort
Multi-Center Study: No
Data Types: Immunological; Questionnaire or Survey; Social
Study Start Date: 09/23/2020
Study End Date: 12/31/2022
Species: Human
Estimated Cohort Size: 1200
Study Population Focus: Adults; African Americans; Hispanics or Latinos; Lower Socioeconomic Status (SES) Populations; Older Adults or Elderly; Racial or Ethnic Minorities; Underserved or Vulnerable Populations
Publication URL: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8482986/; https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9236969/; https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9495476/
Acknowledgement Statement: This study was supported through funding, 3P20GM103653-09S1, for the National Institute of General Medical Sciences (NIGMS) as part of the RADx-UP program. Approved users should acknowledge the provision of data access by dbGaP for accession phs003033.v1.p1, and the NIH RADx Data Hub. Approved users should also acknowledge the specific version(s) of the dataset(s) obtained from the NIH RADx Data Hub.
Funding Opportunity Announcement (FOA) Number: PA-20-135
NIH Grant or Contract Number(s): 3P20GM103653-09S1
Consent/Data Use Limitations: General Research Use
Variable Name | Label |
---|---|
nih_record_id | User ID |
nih_race | What is your race? |
nih_ethnicity | Are you of Hispanic or Latino origin? May include Spanish origin. |
nih_age | What is your age? |
nih_sex | What is your biological sex assigned at birth? |
nih_education | What is the highest level of education you have achieved outside or in the United States? |
nih_employment | Please specify your employment status. |
nih_insurance | What kind of health insurance do you have? |
nih_disability | Do you have a disability, including serious physical or mental conditions, that interfere with your ability to carry out daily activities? |
nih_vape_freq | Vaping Frequency: Do you now use electronic cigarettes every day, some days, rarely, or not at all? |
nih_cig_smoke_freq | Nicotine Frequency: Do you now smoke cigarettes? |
nih_smoking_yn | Do you use any tobacco/nicotine products (including cigarettes, cigars, e-cigarettes, etc)? |
nih_history_smoking | History of Smoking |
nih_alcohol_yn | Alcohol use (Yes or No) |
nih_lifetime_use_alcohol | In your entire life, have you had at least 1 drink of any kind of alcohol, not counting small tastes or sips? (Yes or No) |
nih_alcohol_frequency | How often did you have a drink containing alcohol ? |
nih_asthma | Asthma |
nih_cancer_past_yr | Cancer diagnosis and/or treatment within the past 12 months |
nih_cardiovascular_disease | Cardiovascular disease |
nih_chronic_kidney_disease | Chronic kidney disease |
nih_diabetes | Diabetes |
nih_hypertension | Hypertension |
nih_mental_health_disorder | Mental health disorder |
nih_sickle_cell_disease | Sickle cell disease |
nih_pregnancy | Pregnancy status |
nih_immunocompromised | Immunocompromised condition |
nih_autoimm | Autoimmune disease |
nih_copd | Chronic obstructive pulmonary disease (COPD) |
nih_chronic_lung | Other chronic lung disease |
nih_depression | Depression |
nih_alc_sub_abuse | Alcohol or substance use disorder |
nih_iv_drug_use | Intravenous drug use |
nih_other_chronic_cond | Other chronic condition |
nih_cough | Cough |
nih_fever_chills | Fever or Chills |
nih_diff_breath | Shortness of breath or difficulty breathing |
nih_headache | Headache |
nih_muscle_ache | Muscle ache |
nih_olfactory | New loss of taste or smell |
nih_fatigue | Excessive fatigue |
nih_nausea_vomiting_diarrhea | Nausea, vomiting, or diarrhea |
nih_abdom_pain | Abdominal pain |
nih_skin_rash | Skin rash |
nih_throat_congestion_nose | Sore throat, congestion or runny nose |
nih_other_symp | Other |
nih_health_status | Would you say that (your) health in general is excellent, very good, good, fair, or poor? |
nih_height | What is your height in inches? |
nih_weight | What is your weight in pounds? |
age_yrs | Age For babies less than 1 year old, do not write the age in months. Write 0 as the age. (Years) |
bio_sex_birth_2 | What was your sex assigned at birth on your birth certificate? |
cc_asthma_2 | Asthma |
cc_asud_2 | Alcohol or substance use disorder |
cc_autoimm_2 | Autoimmune disease |
cc_cancer_2 | Cancer diagnosis and/or treatment within the past 12 months |
cc_chronickd_2 | Chronic kidney disease (CKD) |
cc_clung_2 | Other chronic lung disease |
cc_copd_2 | Chronic obstructive pulmonary disease (COPD) |
cc_cvd_2 | Cardiovascular disease (CVD or heart disease) |
cc_depression_2 | Depression |
cc_diabetes_2 | Diabetes |
cc_hypertension_2 | Hypertension (HTN, high blood pressure) |
cc_imm_2 | Immunocompromised condition |
cc_intrav_2 | Intravenous drug use |
cc_otherchroniccond_2 | Other chronic condition |
cc_othermh_2 | Other mental health disorder |
cc_sickle_2 | Sickle Cell Anemia |
covid_abpain_2 | Abdominal Pain |
covid_cough_2 | Cough |
covid_diffbreath_2 | Shortness of breath or difficulty breathing |
covid_fever_2 | Fever or chills |
covid_headache_2 | Headache |
covid_myalgia_2 | Muscle or body aches |
covid_nausea_2 | Feeling sick to your stomach or vomiting, diarrhea |
covid_olfactory_2 | New loss of taste or smell |
covid_other_2 | Other |
covid_runnynose_2 | Sore throat, congestion or runny nose |
covid_skinrash_2 | Skin Rash |
current_employment_status | We would like to know about what you do -- are you working now, looking for work, retired, keeping house, a student, or something else? |
hi_coverage_type | What is the primary kind of health insurance or health care plan that you have now? (Exclude plans that pay for only one type of Service (such as, nursing home care, accidents, family planning, or dental care) and plans that only provide extra cash when hospitalized. ) |
lifetime_use_alcohol | In your entire life, have you had at least 1 drink of any kind of alcohol, not counting small tastes or sips? |
pregnancy_status | Are you currently pregnant? |
race_ethn_hispanic | Are you of Hispanic, Latino, or Spanish origin? |
self_reported_disability | Do you have a disability that interferes with your ability to carry out daily activities? Examples of daily activities include walking, climbing stairs, shopping, balancing a checkbook, bathing or dressing. |
self_reported_height_centimeters | Centimeters |
self_reported_height_feet | Feet |
self_reported_height_inches | Inches |
self_reported_height_meters | Meters |
self_reported_weight_kgs | How much do you weigh without clothes or shoes? If you are currently pregnant, how much did you weigh before your pregnancy? |
self_reported_weight_lbs | How much do you weigh without clothes or shoes? If you are currently pregnant, how much did you weigh before your pregnancy? |
smoker_cur_stat_2 | Do you now smoke cigarettes? |
vaper_cur_stat | Do you now use electronic cigarettes every day, some days, rarely, or not at all? |
ability_exercise | - |
ability_house | - |
access_education | - |
add_depend_anx | - |
add_depend_lone | - |
add_own_anx | - |
add_own_lone | - |
alcohol_daysperweek | - |
alter_conscious | - |
balance | - |
booster | - |
booster_no___1 | - |
booster_no___2 | - |
booster_no___3 | - |
booster_no___4 | - |
booster_no___5 | - |
booster_no___6 | - |
booster_no___7 | - |
booster_no___8 | - |
booster_no___9 | - |
booster_yes___1 | - |
booster_yes___10 | - |
booster_yes___11 | - |
booster_yes___12 | - |
booster_yes___2 | - |
booster_yes___3 | - |
booster_yes___4 | - |
booster_yes___5 | - |
booster_yes___6 | - |
booster_yes___7 | - |
booster_yes___8 | - |
booster_yes___9 | - |
booster_y_other | - |
born | - |
born_age | - |
care_children | - |
cared_dependent | - |
care_disability | - |
care_elderly | - |
care_home | - |
cdc | - |
cdc_week | - |
check_in | - |
child_care | - |
chills | - |
close_restaurant_shop | - |
cnn | - |
cnn_week | - |
comp_internet | - |
computer | - |
cough | - |
count_if_sick | - |
covid_fatique_2 | - |
covid_pandemic_challenges_abod_2 | - |
covid_pandemic_challenges_food_2 | - |
covid_pandemic_challenges_wate_2 | - |
covid_test_approval | - |
covid_test_collection_setting | - |
covid_test_performed_location | - |
covid_test_result | - |
covid_test_specimen_collector | - |
covid_test_specimen_type | - |
covid_test_study_setting | - |
covid_test_tar_dis_stat_2___1 | - |
covid_test_tar_dis_stat_2___2 | - |
covid_test_tar_dis_stat_2___3 | - |
covid_test_tar_dis_stat_2___4 | - |
covid_test_tar_dis_stat_2___5 | - |
covid_test_tar_dis_stat_2___6 | - |
covid_test_type | - |
covid_vaccine | - |
cov_pan_chal_hlth_2 | - |
cov_pan_chal_med_2 | - |
cov_pan_chlng_trans_2 | - |
cov_tst_mthd_2 | - |
coworker_classmate | - |
coworkers_classmates_week | - |
depend_inc_20 | - |
depend_inc_21 | - |
depressed | - |
diarrhea | - |
discomfort_chest | - |
dizziness | - |
edu_years_of_school | - |
emp_bf_cov_oth | - |
empl_category | - |
empl_cate_other | - |
employed_ew | - |
employed_healthcare_2 | - |
- | |
facebook_week | - |
family_friend_die_alone | - |
family_income | - |
family_income_21 | - |
fatigue | - |
fever | - |
flu_vaccinehistind_2 | - |
flu_vaccine_season_3 | - |
fox_news | - |
fox_news_week | - |
friends_family | - |
friends_family_week | - |
gender_identity_term_2 | - |
get_food | - |
get_med_appt | - |
get_meds | - |
get_support | - |
go_hospital | - |
go_quarantine | - |
governor_mayor | - |
governor_mayor_week | - |
govt_website | - |
govt_website_week | - |
hands_clammy_think | - |
headache | - |
health_depts | - |
health_depts_week | - |
heart_races | - |
help_errand | - |
hi_loss_covid | - |
hopeful_future | - |
hosp_current_status | - |
hospitalized_yn | - |
household_famgen_3 | - |
household_homeless | - |
incent_vac | - |
income_from_others | - |
income_from_othrs_new | - |
infected_infect_others | - |
isolate_maintain_job | - |
jobloss_covid19_2 | - |
joint_aches | - |
lack_energy | - |
language_english | - |
language_home___1 | - |
language_home___5 | - |
language_home___9 | - |
language_home___90 | - |
language_home___99 | - |
level_violence | - |
local_news | - |
local_news_week | - |
lonely | - |
lose_life | - |
loss_appetite | - |
loss_smell | - |
loss_taste | - |
mandatory_mask | - |
mandatory_vac | - |
mask_pub | - |
med_refill_arrange | - |
meds_cond | - |
meds_cond_other | - |
miss_meds_reas | - |
more_clean | - |
more_disinfect | - |
more_handsan | - |
more_handwash | - |
more_less_safe | - |
msnbc | - |
msnbc_week | - |
muscle_aches | - |
nausea | - |
neigh_go_store | - |
nervous | - |
news_anxious | - |
newspaper | - |
newspaper_week | - |
no_source | - |
no_source_new | - |
no_takeou | - |
no_visitor_hosp_nursing | - |
npr | - |
npr_week | - |
numb_tested | - |
other | - |
other_fam | - |
other_income | - |
other_income_new | - |
other_pers | - |
parent_care | - |
perceive_risk_other | - |
physical_reactions | - |
phys_interact | - |
positiveyear_covidtest_3 | - |
postpone_appt | - |
pract_social_distance | - |
pres_trump | - |
pres_trump_week | - |
public_asst | - |
public_asst_new | - |
quarantine_maintain_job | - |
race_ethn_asian_detail_3___1 | - |
race_ethn_asian_detail_3___2 | - |
race_ethn_asian_detail_3___3 | - |
race_ethn_asian_detail_3___4 | - |
race_ethn_asian_detail_3___5 | - |
race_ethn_hispanic_detail_2___1 | - |
race_ethn_hispanic_detail_2___2 | - |
race_ethn_hispanic_detail_2___3 | - |
race_ethn_hispanic_detail_2___4 | - |
race_ethn_islander_detail_2___1 | - |
race_ethn_islander_detail_2___10 | - |
race_ethn_islander_detail_2___11 | - |
race_ethn_islander_detail_2___12 | - |
race_ethn_islander_detail_2___13 | - |
race_ethn_islander_detail_2___14 | - |
race_ethn_islander_detail_2___2 | - |
race_ethn_islander_detail_2___3 | - |
race_ethn_islander_detail_2___4 | - |
race_ethn_islander_detail_2___5 | - |
race_ethn_islander_detail_2___6 | - |
race_ethn_islander_detail_2___7 | - |
race_ethn_islander_detail_2___8 | - |
race_ethn_islander_detail_2___9 | - |
race_ethn_race___1 | - |
race_ethn_race___15 | - |
race_ethn_race___2 | - |
race_ethn_race___3 | - |
race_ethn_race___4 | - |
race_ethn_race___5 | - |
race_ethn_race___99 | - |
reas_miss_appt_other | - |
reas_miss_meds_other | - |
recentresult_covidtest | - |
redcap_event_name | - |
redcap_repeat_instance | - |
redcap_repeat_instrument | - |
runny_nose | - |
safe_home | - |
safe_neigh | - |
safe_vac | - |
seizure | - |
self_reported_health_status_assessment | - |
self_reported_height_coded | - |
self_reported_weight_units_2 | - |
self_solate_quarant | - |
serology_test | - |
serology_t_other | - |
severit_sickest | - |
sex_orient_id | - |
short_breath_mov | - |
short_breath_rest | - |
site | - |
site_loc3 | - |
site_loc4 | - |
site_loc5 | - |
site_loc6 | - |
site_loca1 | - |
site_loca2 | - |
sleep | - |
smoker_number | - |
some_envrironment | - |
someone_die | - |
sore_throat | - |
spouse_care | - |
stay_home_orders | - |
stay_home_possible | - |
stock_food | - |
stress_household | - |
stress_pandemic | - |
test_accesseasy_2 | - |
test_accesswhere_2 | - |
tested_for_covid | - |
tested_positive_for_covid | - |
- | |
twitter_week | - |
uncomfortable_think | - |
under_table | - |
under_table_new | - |
unsure_reduce | - |
vaccine_avail | - |
vaccine_concerns___11 | - |
vaccine_concerns___12 | - |
vaccine_concerns___13 | - |
vaccine_concerns_3___1 | - |
vaccine_concerns_3___10 | - |
vaccine_concerns_3___2 | - |
vaccine_concerns_3___3 | - |
vaccine_concerns_3___4 | - |
vaccine_concerns_3___5 | - |
vaccine_concerns_3___6 | - |
vaccine_concerns_3___7 | - |
vaccine_concerns_3___8 | - |
vaccine_concerns_3___9 | - |
vomiting | - |
wash_hands | - |
wear_mask | - |
who | - |
who_week | - |
why_no_test___1 | - |
why_no_test___10 | - |
why_no_test___11 | - |
why_no_test___2 | - |
why_no_test___3 | - |
why_no_test___4 | - |
why_no_test___5 | - |
why_no_test___6 | - |
why_no_test___7 | - |
why_no_test___8 | - |
why_no_test___9 | - |
why_no_test_oth | - |
wipe_groceries | - |
wipe_package | - |
work_closecont_2 | - |
work_ppe_2 | - |
work_together | - |
work_wash_2 | - |
you_infected | - |