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Study Information

dbGaP Study Accession: phs002551

NIH Institute/Center: NIMHD

RADx Data Program: RADx-rad

Release Date: 11/08/2022

DOI: 10.60773/y2n3-k036

Study Description: The Marshallese/Native Hawaiian/Pacific Islanders: Alternate Surveillance for COVID-19 in a Unique Population (MASC UP) study relied on innovative, culturally tailored participatory surveillance methods to identify and evaluate strategies to reduce the spread of COVID-19 in this high-risk, clustered population. First, a cohort was recruited to deploy a multi-modal, multi-level surveillance system in two of the largest Marshallese/Native Hawaiian/Pacific Islanders communities in the US: Northwest Arkansas (n = 300), Spokane County, and Seattle area Washington (n = 300). Each cohort member was followed longitudinally for at least 12 months. Modalities included providing kits to detect changes in body temperature, public service outreach to reduce stigma associated with reporting symptoms, and deploying social media and text message-based screening technology to augment conventional test-based surveillance. Second, a social contact network was constructed among participants from the surveillance cohort to identify community structures and networks that increased the risk of COVID-19 infection. The findings were used to integrate effective components into a surveillance ecosystem that can be disseminated to other clustered groups. The specific aims were to: 1) Create a longitudinal, multi-modal and multi-level surveillance cohort (n = 600) that targeted early detection of symptomatic and asymptomatic COVID-19 cases among Marshallese/Native Hawaiian/Pacific Islanders adults in the continental U.S.; 2) Characterize the social contact network among surveillance cohort members to identify community structures and networks that put individuals at increased risk of acquiring COVID-19; and 3) Identify effective modalities for participatory disease surveillance and sustainably integrate them into ongoing COVID-19 and other public health surveillance efforts for the Marshallese/Native Hawaiian/Pacific Islanders population. MASC UP demonstrated the value of culturally tailored, participatory disease surveillance developed and tested in real-world settings to mitigate COVID-19 disparities in a high-risk, clustered population that has been profoundly underserved by public health efforts to date. The findings can be disseminated and implemented for improved surveillance and disease prevention in other high-risk, non-institutionalized U.S. minority groups.

Updated Date: 01/18/2024

Principal Investigator: Dillard, Denise

Has Data Files: Yes

Study Domain: Disease Surveillance; Multimodal Surveillance; Virological Testing

Data Collection Method: Smartphone; Survey

Keywords: Anosmia; COVID Communication via Social Media; COVID Communication via Text Messaging; COVID Outreach/Education; COVID-related Health Disparities; Multimodality; Risk Mitigation

Study Design: Longitudinal Cohort

Multi-Center Study: No

Data Types: Clinical; Questionnaire or Survey

Study Start Date: 12/21/2020

Study End Date: 11/30/2022

Species: Human

Sample Size: 357

Study Population Focus: Adults; Native Hawaiians or Other Pacific Islanders; Underserved or Vulnerable Populations

Acknowledgement Statement: This study was supported through funding, 4R01MD016526-02, for the National Institute on Minority Health and Health Disparities (NIMHD) as part of the RADx-rad program. Approved users should acknowledge the provision of data access by dbGaP for accession phs002551.v1.p1, and the NIH RADx Data Hub. Approved users should also acknowledge the specific version(s) of the dataset(s) obtained from the NIH RADx Data Hub.

Funding Opportunity Announcement (FOA) Number: RFA-OD-20-016

NIH Grant or Contract Number(s): 4R01MD016526-02

Consent/Data Use Limitations: General Research Use

Variable Information
Total Variables: 89
Study Variables Information Table
Variable Name
Label
nih_raceWhat is your race?
nih_ethnicityAre you of Hispanic or Latino origin? May include Spanish origin.
nih_ageWhat is your age?
nih_zipWhat is your zip code?
nih_employmentPlease specify your employment status.
nih_insuranceWhat kind of health insurance do you have?
nih_deafAre you deaf or do you have serious difficulty hearing?
nih_blindAre you blind or do you have serious difficulty seeing, even when wearing glasses?
nih_memoryBecause of a physical, mental, or emotional condition, do you have serious difficulty concentrating, remembering, or making decisions?
nih_walk_climbDo you have serious difficulty walking or climbing stairs?
nih_dress_batheDo you have difficulty dressing or bathing?
nih_errandBecause of a physical, mental, or emotional condition, do you have difficulty doing errands alone such as visiting a doctor's office or shopping?
nih_vaping_ynVaping use (Yes or No)
nih_nicotine_ynNicotine use (Yes or No)
nih_alcohol_ynAlcohol use (Yes or No)
nih_asthmaAsthma
nih_cancerCancer
nih_cardiovascular_diseaseCardiovascular disease
nih_chronic_kidney_diseaseChronic kidney disease
nih_chronic_lung_diseaseChronic lung disease
nih_diabetesDiabetes
nih_hypertensionHypertension
nih_immunosuppressive_conditionImmunosuppressive condition
nih_serious_mental_illnessSerious mental illness
nih_sickle_cell_diseaseSickle cell disease
nih_coughCough
nih_fever_chillsFever or Chills
nih_diff_breathShortness of breath or difficulty breathing
nih_headacheHeadache
nih_muscle_acheMuscle ache
nih_olfactoryNew loss of taste or smell
nih_fatigueExcessive fatigue
nih_nausea_vomiting_diarrheaNausea, vomiting, or diarrhea
nih_abdom_painAbdominal pain
nih_skin_rashSkin rash
nih_conjunctivitisConjunctivitis
nih_health_statusWould you say that (your) health in general is excellent, very good, good, fair, or poor?
nih_heightWhat is your height in inches?
nih_weightWhat is your weight in pounds?
abdominal_painAbdominal pain
ageWhat is your age? (Age in years. For babies less than 1 year old, write 0 as the age)
alcohol_useAlcohol Use
asthmaAsthma
blindAre you blind or do you have serious difficulty seeing, even when wearing glasses?
cancerCancer
cardiovascular_diseaseCardiovascular disease
chillsChills
chronic_kidney_diseaseChronic kidney disease
chronic_lung_diseaseChronic lung disease
conjunctivitisConjunctivitis
coughCough
deafAre you deaf or do you have serious difficulty hearing?
diabetesDiabetes
diarrheaDiarrhea
dress_bathe_disDo you have difficulty dressing or bathing?
employmentAre you employed?
errand_disBecause of a physical, mental, or emotional condition, do you have difficulty doing errands alone such as visiting a doctor's office or shopping?
ethnicityAre you of Hispanic or Latino origin?
excessive_fatigueExcessive fatigue
feverFever
headacheHeadache
health_statusWould you say that (your) health in general is excellent, very good, good, fair or poor?
height_feetHeight Feet
height_inchesHeight Inches
hypertensionHypertension
immunosuppressive_conditioImmunosuppressive condition
insuranceWhat kind of health insurance do you have?
memory_disBecause of a physical, mental, or emotional condition, do you have serious difficulty concentrating, remembering, or making decisions?
muscle_acheMuscle ache
nausea_vomitingNausea/vomiting
new_loss_of_taste_or_smellNew loss of taste or smell
nicotineNicotine Use
raceWhat is your race? Mark one or more boxes.
serious_mental_illnessSerious mental illness
shortness_of_breath_or_difShortness of breath or difficulty breathing
sickle_cell_diseaseSickle cell disease
skin_rashSkin rash
vapingVaping Use
walking_climbing_disDo you have serious difficulty walking or climbing stairs?
weight_lbsWhat is your weight? (Weight in pounds)
zipZip or Postal Code: (De-Identified zip code)
body_temperature-
body_temperature_date-
body_temperature_time-
body_temperature_unit-
education_level-
gender_identity-
nih_record_id-
study_id-
Data Files
Total Files: 9
Data Files: 3
Metadata Files: 3
Dictionary Files: 3
Study Datasets Table
File Name
File Type
File Format(s)
# of Records
# of Variables
Metadata
Dictionary
rad_016_526-01_MASCUP_v007_DATA_transformcopy.csvTabular Data - Harmonizedcsv287
rad_016_526-01_MASCUP_TEMPERATURE_v007_DATA_origcopy.csvTabular Data - Non-harmonizedcsv17296
rad_016_526-01_MASCUP_v007_DATA_origcopy.csvTabular Data - Non-harmonizedcsv287