dbGaP Study Accession: phs002551
NIH Institute/Center: NIMHD
RADx Data Program: RADx-rad
Release Date: 11/08/2022
DOI: 10.60773/y2n3-k036
Study Description: The Marshallese/Native Hawaiian/Pacific Islanders: Alternate Surveillance for COVID-19 in a Unique Population (MASC UP) study relied on innovative, culturally tailored participatory surveillance methods to identify and evaluate strategies to reduce the spread of COVID-19 in this high-risk, clustered population. First, a cohort was recruited to deploy a multi-modal, multi-level surveillance system in two of the largest Marshallese/Native Hawaiian/Pacific Islanders communities in the US: Northwest Arkansas (n = 300), Spokane County, and Seattle area Washington (n = 300). Each cohort member was followed longitudinally for at least 12 months. Modalities included providing kits to detect changes in body temperature, public service outreach to reduce stigma associated with reporting symptoms, and deploying social media and text message-based screening technology to augment conventional test-based surveillance. Second, a social contact network was constructed among participants from the surveillance cohort to identify community structures and networks that increased the risk of COVID-19 infection. The findings were used to integrate effective components into a surveillance ecosystem that can be disseminated to other clustered groups. The specific aims were to: 1) Create a longitudinal, multi-modal and multi-level surveillance cohort (n = 600) that targeted early detection of symptomatic and asymptomatic COVID-19 cases among Marshallese/Native Hawaiian/Pacific Islanders adults in the continental U.S.; 2) Characterize the social contact network among surveillance cohort members to identify community structures and networks that put individuals at increased risk of acquiring COVID-19; and 3) Identify effective modalities for participatory disease surveillance and sustainably integrate them into ongoing COVID-19 and other public health surveillance efforts for the Marshallese/Native Hawaiian/Pacific Islanders population. MASC UP demonstrated the value of culturally tailored, participatory disease surveillance developed and tested in real-world settings to mitigate COVID-19 disparities in a high-risk, clustered population that has been profoundly underserved by public health efforts to date. The findings can be disseminated and implemented for improved surveillance and disease prevention in other high-risk, non-institutionalized U.S. minority groups.
Updated Date: 01/18/2024
Principal Investigator: Dillard, Denise
Has Data Files: Yes
Study Domain: Disease Surveillance; Multimodal Surveillance; Virological Testing
Data Collection Method: Smartphone; Survey
Keywords: Anosmia; COVID Communication via Social Media; COVID Communication via Text Messaging; COVID Outreach/Education; COVID-related Health Disparities; Multimodality; Risk Mitigation
Study Design: Longitudinal Cohort
Multi-Center Study: No
Data Types: Clinical; Questionnaire or Survey
Study Start Date: 12/21/2020
Study End Date: 11/30/2022
Species: Human
Sample Size: 357
Study Population Focus: Adults; Native Hawaiians or Other Pacific Islanders; Underserved or Vulnerable Populations
Acknowledgement Statement: This study was supported through funding, 4R01MD016526-02, for the National Institute on Minority Health and Health Disparities (NIMHD) as part of the RADx-rad program. Approved users should acknowledge the provision of data access by dbGaP for accession phs002551.v1.p1, and the NIH RADx Data Hub. Approved users should also acknowledge the specific version(s) of the dataset(s) obtained from the NIH RADx Data Hub.
Funding Opportunity Announcement (FOA) Number: RFA-OD-20-016
NIH Grant or Contract Number(s): 4R01MD016526-02
Consent/Data Use Limitations: General Research Use
Variable Name | Label |
---|---|
nih_race | What is your race? |
nih_ethnicity | Are you of Hispanic or Latino origin? May include Spanish origin. |
nih_age | What is your age? |
nih_zip | What is your zip code? |
nih_employment | Please specify your employment status. |
nih_insurance | What kind of health insurance do you have? |
nih_deaf | Are you deaf or do you have serious difficulty hearing? |
nih_blind | Are you blind or do you have serious difficulty seeing, even when wearing glasses? |
nih_memory | Because of a physical, mental, or emotional condition, do you have serious difficulty concentrating, remembering, or making decisions? |
nih_walk_climb | Do you have serious difficulty walking or climbing stairs? |
nih_dress_bathe | Do you have difficulty dressing or bathing? |
nih_errand | Because of a physical, mental, or emotional condition, do you have difficulty doing errands alone such as visiting a doctor's office or shopping? |
nih_vaping_yn | Vaping use (Yes or No) |
nih_nicotine_yn | Nicotine use (Yes or No) |
nih_alcohol_yn | Alcohol use (Yes or No) |
nih_asthma | Asthma |
nih_cancer | Cancer |
nih_cardiovascular_disease | Cardiovascular disease |
nih_chronic_kidney_disease | Chronic kidney disease |
nih_chronic_lung_disease | Chronic lung disease |
nih_diabetes | Diabetes |
nih_hypertension | Hypertension |
nih_immunosuppressive_condition | Immunosuppressive condition |
nih_serious_mental_illness | Serious mental illness |
nih_sickle_cell_disease | Sickle cell disease |
nih_cough | Cough |
nih_fever_chills | Fever or Chills |
nih_diff_breath | Shortness of breath or difficulty breathing |
nih_headache | Headache |
nih_muscle_ache | Muscle ache |
nih_olfactory | New loss of taste or smell |
nih_fatigue | Excessive fatigue |
nih_nausea_vomiting_diarrhea | Nausea, vomiting, or diarrhea |
nih_abdom_pain | Abdominal pain |
nih_skin_rash | Skin rash |
nih_conjunctivitis | Conjunctivitis |
nih_health_status | Would you say that (your) health in general is excellent, very good, good, fair, or poor? |
nih_height | What is your height in inches? |
nih_weight | What is your weight in pounds? |
abdominal_pain | Abdominal pain |
age | What is your age? (Age in years. For babies less than 1 year old, write 0 as the age) |
alcohol_use | Alcohol Use |
asthma | Asthma |
blind | Are you blind or do you have serious difficulty seeing, even when wearing glasses? |
cancer | Cancer |
cardiovascular_disease | Cardiovascular disease |
chills | Chills |
chronic_kidney_disease | Chronic kidney disease |
chronic_lung_disease | Chronic lung disease |
conjunctivitis | Conjunctivitis |
cough | Cough |
deaf | Are you deaf or do you have serious difficulty hearing? |
diabetes | Diabetes |
diarrhea | Diarrhea |
dress_bathe_dis | Do you have difficulty dressing or bathing? |
employment | Are you employed? |
errand_dis | Because of a physical, mental, or emotional condition, do you have difficulty doing errands alone such as visiting a doctor's office or shopping? |
ethnicity | Are you of Hispanic or Latino origin? |
excessive_fatigue | Excessive fatigue |
fever | Fever |
headache | Headache |
health_status | Would you say that (your) health in general is excellent, very good, good, fair or poor? |
height_feet | Height Feet |
height_inches | Height Inches |
hypertension | Hypertension |
immunosuppressive_conditio | Immunosuppressive condition |
insurance | What kind of health insurance do you have? |
memory_dis | Because of a physical, mental, or emotional condition, do you have serious difficulty concentrating, remembering, or making decisions? |
muscle_ache | Muscle ache |
nausea_vomiting | Nausea/vomiting |
new_loss_of_taste_or_smell | New loss of taste or smell |
nicotine | Nicotine Use |
race | What is your race? Mark one or more boxes. |
serious_mental_illness | Serious mental illness |
shortness_of_breath_or_dif | Shortness of breath or difficulty breathing |
sickle_cell_disease | Sickle cell disease |
skin_rash | Skin rash |
vaping | Vaping Use |
walking_climbing_dis | Do you have serious difficulty walking or climbing stairs? |
weight_lbs | What is your weight? (Weight in pounds) |
zip | Zip or Postal Code: (De-Identified zip code) |
body_temperature | - |
body_temperature_date | - |
body_temperature_time | - |
body_temperature_unit | - |
education_level | - |
gender_identity | - |
nih_record_id | - |
study_id | - |